[Anonymous]

Hi all

Henry had his bone marrow test at the beginning of January his aspirate is all clear of myeloma. His xray shows that his skull lesions have stayed the same size and no more are visible. He started the prep for stem cell collection last week. The day of cyclomosphide was long and he felt a little sick. The next day he started the growth factor injections and was fine up until monday after when he was at work and suddenly had very bad back ache which continued on tuesday as well – his nurse did warn him that he would feel like he had been kicked by a horse. However we went to Oxford for stem cell harvest on Wednesday and they were able to collect enough stem cells in one sitting, Henry was so pleased he didnt have to go back again. He had a slight temperature afterwards and as a precaution the doctor made us an appointment at the mac unit in MK for a check up. All is well and Henry's work up day is hopefully going to be the 10 Feb, with the plan to go into hospital at the beginning of March. He is feeling a lot better now he is off the thalidomide (200mg) he is back to his old self, which is a great comfort to me. Our daughter is doing the British 10K London run in July for Myeloma which is great – are we allowed to put the links on his forum or not? We are also hoping to join the myeloma support group in London as there doesnt appear to be one in Milton Keynes… does anyone else attend the one in London? thank you all again for your support xxxxxxxxxxx

[HelenParticipant]

Hi Sarah
All in one go is good, it took me 2 days but only for an hour on the second day, and the feeling of 'kicked by a horse' lasted for about 3 weeks afterwards, so enjoy the time now before the sct.
My daughter did the great north run last year for blood cancer research and raised a couple of thousand, people do post the links, we didn't as I was still not telling anyone I was ill!
I'm now 5 months post sct and next week it will be 1 year since my diagnosis, and while I'm not 100% I'm tons better than this time last year
Good luck
Helen

[PerkymiteParticipant]

Hi Sarah, It sounds as if Henry is doing well, keep it up. Several people have posted links before so I see no harm in you doing so as well. Please thank your daughter for me the money raised is so so important.

Kindest regards – Vasbyte

David

[ElizellenParticipant]

Wow, Henry did really well to get enough cells in one go!
It took me three days and still I only just yielded enough for one procedure. 🙁

Feel free to post a link for the fundraising your daughter is going to do and thank you to her for her support for myeloma uk.

[adamsp41Participant]

Hi Sarah and Henry …WOW…absolutely amazed at the stem cell collection in one sitting ..mine took 3 days..5-6 hours per day..well done young man…good luck to your daughter in her fundraising activities..all of you keep up the good work…stay safe…Phil:-)

[PerkymiteParticipant]

I am sorry to go one better, there is always somebody and it happens to be me this time:-D

My stem Cell Collection took six days, two goes of three days each, 5-6 hours per day so shall we say 36 hours>:-) . And, then, I only harvested enough for one SCT 🙁 .

Kindest regards – Vasbyte

David

[tomParticipant]

Hi Sarah and Henry

A well done on the collection 😀 I also done mine in one sitting 😀 and enough for two transplants 😎 but and its a big but they put them into THREE bags :-/ yes three so one bag isn't enough so they gave me all three bags and that as you know leaves nothing in the bank (lord i know how that feels lol) but hey ho am sure I wont need another transplant cos this one is going to last me years and years 😛

You all stay fit and healthy 😉

Love Tom "Onwards and Upwards" xx

[brochoParticipant]

Hi Sarah I am very impressed by Henrys stem cell production!! I am one of the people who struggled to produce the minimum needed too Good luck with the next step please keep in touch love Bridget

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