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I have been diagnosed with MGuS for perhaps six or seven years. I used to be quite fixated on the blood test results but not so much now. The one thing that you say that is revealing is that your next blood test is in three months time. My blood tests are at 3/4 monthly intervals and I consider that this is for those in the lower risk category, though there is no way to determine your own personal path with this condition, I take it that I have nothing to worry about as long as my blood tests intervals remain at this level. I once did get a call once after one blood test telling me to come back immediately for another test, but I felt so well I wasn’t concerned, and it turned out to be nothing. I don’t even get an appointment at Haematology nowadays and they are supposed to ring me with the results, but rarely do, which doesn’t bother me since I get a latter from my GP in due course.
At one stage my results had fallen so low I thought that i would be discharged, but that didn’t happen. Rather like investments, they can down as well as up. The important thing is that you’re being tested but, until it spikes (if it ever does), it’s simply a matter of waiting and getting on with life. I’m a spritely 68 year old and get plenty of aches and pains from time to time, but nothing I can blame on Myeloma. The MGuS blood test is so all encompassing, it’s quite useful since I lost a kidney to cancer 13 years ago and enables me to check my eGFR is, but even that has improved.
Maybe I’m lucky, but I keep an eye on the results and let Haematology do the worrying.
graham-c.
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