[adamsp41Participant]

Hi all….visited my monthly consultation last Weds and it was agreed for me to come off the X1 trial…as the Revlimid was suppressing my bloods and also my Liver readings( I have had a summer break from Revlimid for 12 weeks as a pre cusor the decision)…still on Bonefos and some other drugs for my blood pressure and will now only be seen every 2 months maybe pushed out to 3 months after seeing how things settle down….are there any other mm'ers out there who have left the trial and what were the reasons for doing so….oh by the way all my blood readings are now normal and my liver readings are getting closer to normal…stay safe…Phil:-)

[VickiParticipant]

Hi Phil

Colin elected to come off mm trial when he was randomised. He was fed up with asking loads of tablets and the other thing was that he also had very low blood counts of the revlimid. He is on two month assessment at the hospital and still does the water samples etc. he felt good about coming off :-). Hope the remission keeps going 🙂

Vicki and Colin xx

[Author]

Posts