[bigdickspiderParticipant]

My husband has very recently been diagnosed with myeloma and we are meeting with our consultants on where we are going to go with the treatments etc, trial, etc. I’ve gone into panic mode and think that I should be giving up work to be at home with him. Should I wait and see how his treatment will affect him, does he need me to be at home. I don’t know what to do for the best

[tonyfParticipant]

Good evening, what a way to spend Valentines! I know it’s easy to say, but please don’t panic, mm will not overtake you, why not wait and see what the consultant has to say before you reach any decisions. Is your husband still mobile and can he fend for himself, ie cook, go to the loo, shopping, go out for walks etc etc. if yes then let things stay as they are.
This is a great site for advice and support, remember we’ve been there and are in the process of dealing with myeloma.
Hope all goes well.
Regards
Tony F

[CarolsymonsParticipant]

As Tony said if your husband is mobile there is no need for you to be at home all day. I managed to keep doing everything for myself (I have mm) and my husband, except for the last 6 weeks of the initial treatment and a couple of weeks after transplant. Everyone is different I guess but I would not advise you to give up work.

Carol

[VickiParticipant]

Hi there,

Yes don’t do anything too rash. Wait and see what the consultants say.,as long as your husband is able to care for himself then try to keep things as normal as you can for as long as you can 🙂

Vickimand colin

[Ang287Participant]

Hi
It’s nearly two years since my husband’s diagnosis now. It was during the first few months thatn I now wish I had had a bit of time off work but we were going through a reconfiguration and I didn’t want to take time off as I wanted to keep my job. It was 4 months of severe back pain before he was diagnosed with fractures of spine and then MM. Once he started chemo a couple of months later the pain started improving and he could then cope with working part-time himself (and part-time at home) up to the stem cell transplant phase. I had saved my holidays ready for when he went in for stem cell transplant and had 2 weeks at home with him before I returned to work. My husband’s job was restructured 9 days after his stem cell transplant and he was offered voluntary redundancy which he took. I am so glad I am still in my job as he does not need me at home all day with him and he is now undertaking activities that he was always wanted to do – learning to paint etc. I am now the only worker so I feel it is important to keep my job, maybe just for another 2 years when I will be 60. We have just returned from 5 days in Benidorm with our family to celebrate my 58th birthday and his year’s remission. This time last year he was in hospital recovering from his stem cell transplant.
I would advise you not to rush into any decision about work as things do get better and I would like to wish you both good luck for the future and a long remission 🙂
Angela x

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