I know it varies from patient to patient but I’d be grateful for any views/experiences that are relevant. My husband was diagnosed early and has just had his SCT and we are on day 43. He will have an MRI and another bone marrow biopsy mid December and then the consultant will tell us, rather dramatically on New Years Eve, how many cancer cells are left and roughly how long he expects his remission to be.He seems to have responded well to treatment and is recovering well but I don’t know if that links with how good or how long the remission will be.
My question is what does remission look like? He will be on a maintenance drug from March onwards. Will we have to continue to be watchful for infection? Is he likely to continue to feel fatigued – at the moment he is wanting to plan lots of travel and I just don’t know how realistic any of that is with cancer. The awful thing for us too is that friends and family seem to think that once it’s in remission, it is gone but of course we know that is not the case. Grateful for any insights into how you’ve handled remission and your experience of it and day-to-day life and travelling abroad etc.
Thank you so much.
