gcoulter

  • Hi

    You are clearly going to be there for her, which is the the number 1 thing you can do. In terms of what else then from my experience there are a couple of things you can think of.

    My wife was diagnosed 3 years ago aged 48. Like your mum she was, and still is, reluctant to read a lot about Myeloma. I did this for her, and was able to pass it…[Read more]

  • gcoulter replied to the topic Transplant anxiety in the forum Newcomers 5 years, 5 months ago

    Hi

    My wife had her stem cell transplant in September after 6 rounds of VTD. Like you she was dreading it.

    Whilst it is different for everyone, and my wife did have a tough few days, we would say it wasn’t as bad as she had thought. Perhaps this was the effect all this information had, when you are built up to expect the worst, then it usually…[Read more]

  • Hi Richard

    My wife was diagnosed at the same age, then spent 2 years being monitored every 6 weeks or so. She then went on to treatment this time last year, VTD, followed by a stem cell transplant in September. She is now in remission.

    I remember when we were first told, it is a very confusing time, trying to absorb and understand…[Read more]

  • gcoulter replied to the topic Treatments in the forum Newcomers 5 years, 6 months ago

    Yes very small world indeed, and yes she had it in 10N. She has recovered really well and has been out and about for around a month now. We were at a wedding a couple of weeks ago, which back in the summer we didn’t think would have been possible.

  • gcoulter replied to the topic Treatments in the forum Newcomers 5 years, 6 months ago

    It’s my wife (Edel) who has Myeloma, and she had her SCT in September this year after 6 cycles of VTD. Our consultant is Dr Boyd, in Mandeville, Craigavon. Stevie if you live in the Banbridge area then I may know you, as we used to be neighbours! Either that or your name is more common than you think.

    Graham

  • gcoulter replied to the topic Treatments in the forum Newcomers 5 years, 6 months ago

    Hi Stevie, welcome to the forum, I agree the NHS are super here in NI.

     

    Graham

  • Jane

    My wife has been monitored for almost two years now and they’ve been keeping a particular eye on her renal function. Although her protein level is high they didn’t want to start treatment until it was affecting something.

    She was advised to drink 21/2 to 3 litres of water a day. She initially found this hard and this reflected in her blood…[Read more]

  • Jane

    My wife has been monitored for almost two years now and they’ve been keeping a particular eye on her renal function. Although her protein level is high they didn’t want to start treatment until it was affecting something.

    She was advised to drink 21/2 to 3 litres of water a day. She initially found this hard and this reflected in her blood…[Read more]

  • Hi

    I’m sure the consultant has told you to drink plenty of water, this seems to have really helped my wife. It’s hard to get used to drinking 2/3 litres a day, and initially my wife could never remember how much she had drunk by the end of the day. So she started filling a jug every morning and pouring from it during the day, this made it much…[Read more]

  • Hi Mark

    My wife was diagnosed almost two years ago (aged 48) and we felt exactly the same as you do now, scared confused worried.

    Edel was diagnosed after having pneumonia for the 2nd time in two years, she had x-rays, a PET etc and after a bit of deliberation they put her on a watch and wait. Although her protein levels were almost 40, as it…[Read more]