This topic contains 10 replies, has 6 voices, and was last updated by 
BADGER 10 years, 7 months ago.
Hi all
Just a little update on my exploits during the past couple of weeks.
A week gone Wednesday I had an appointment with my radiologist re back pain. Turned up on time went in and had the consult – she identified two areas that could benefit from a blast of radiation. T1 and T10 I think was the verdict and I agreed to go ahead. Good she said because I’ve booked you in for a CT scan right after this meeting and I’ve booked you in for the treatment after that! So 3 hours after turning up for my appointment we were on our way home all done – now that’s what I call service.
Wednesday night my back got a bit sore so took the usual pain killers. Thursday my back was very painful and my pain killers didn’t touch the pain by the afternoon I was in agony! Went to the day case unit and I was immediately admitted for pain control. Had the usual X-ray – think I must glow in the dark now – that showed a collapsed vertebrae not one operated on.
So started my regular 4 night stay at the hotel NHS. I’m really going to have to break this habit. At the moment my back is uncomfortable as I’ve weaned myself off the morphine and I’m resting up. Just started cycle 4 of Pom. fingers crossed I can get through this cycle without any incidents.
Every day is a gift
Andy xx
Oh Andy,
Sorry to hear you are going through the mill a bit. This myeloma is such a bugger…..affecting the blood is one thing but when it affects the bones ic completely another and that’s the real low baller of this damn disease. Hope things are starting to improve a but now. How come they didn’t spot the collapse coming?
Hope stephs ok too 🙂
Vicki and Colin xx
Hi Andy
I’m just back from holiday and it seems I can’t turn my back and you have posted another whoops! How are you doing now.
And hi Vicki ..how was Mauritius?
Love Helen
Hi Andy
You are at the stage of the game were it’s important that every thing is under control,and you are making the right decision ,so all good,try to think back when you were a novice at this!!!!,now you go in and know more about your condition than most of the people you are dealing with!!!! Or do you go straight to unit and by pass A&E.!!!?????
Bit fed up as have just returned from hospital,called ambulance at 7 am,no beds on unit,in a ward with respirator problems!!!!waiting on platelets and intravenous antibiotics!!!!
So Andy be grateful!!!!,keep your chin up and keep smiling, love Eve
Hi Eve
Have sent you message, hope Slim is sorted soon? When do the family arrive?
Love Helen
Hi Vicki
The collapsed vertebrae was written in my discharge notes. When I reread the notes the doc was comparing my new X-ray to one taken in 2011! So I don’t think that was new or the cause of my pain. It was more likely a side effect of my radiotherapy. Oh welcome back 😉 glad you had a good holiday.
Hi Helen
Welcome back from your holiday hope you had a good time. I’m doing ok now thanks Helen my back is ok well as ok as it gets. Feeling the benifit of the radiotherapy now. My last MRI scan showed a little more damage to T1 and T12 so I’m crumbling still though slowly. I seem to be getting along ok with the Pomalidomide no major side effects if you ignore the two incidences of sepsis.
Hi Eve
I go straight to the day unit or if at night I ring the ward and they get me admitted. I don’t mess about with the doctors or A&E it’s what I was told to do from the very start.
Unfortunately when I have been admitted recently the ward has been full so I get a bed first in the AEU then get shipped out to another ward if possible. I know what you mean about knowing more than the medics on the other wards though you do have to keep them right lol till my consultant or specialist nurse pops by. I’m grateful for everything Eve especially days out of hospital. My aim is to get through April without a stay in hospital.
Every day is a gift
Andy xx
Hi Eve
Hope Slim is doing ok now. You must be worn out.
Andy xx
Hi Andy
Yes I am very tired,you would think with Slim being in hospital,that I would have some peace of mind???.
Any way he is coming home today,and will feel far more comfortable with that.
He has to go into A&E,you go through the whole routine,3 hours on A&E moved to back room,no beds,he was moved to a ward eventually, not specialised,they only have six beds!!!! Which are always full,they new his platelets were only 5 and I kept asking about them until I left at 8 pm!!!!! On order!!!! This is from being admitted at 8am.
Not a happy bunny,hence a 4am post.
Must have a look at his risk assessment when I go in,the last one was so incorrect,
My aim is to keep Slim at home,but has had 2 admissions in two weeks,will be on there door step first thing,!!!!
Keep well Andy,those Whoopsies will have to stop,April is to nice a month to spend even one day in hospital,you cannot smell the blue bells from there. Love Eve
Hi Andy
We have been having whoops!!!!,so I thought I would tell you about it! So you have some idea about Whoops,s!! Lol
As you know Slim was in hospital discharged yesterday at 1 pm, home tired and looking forward to bed!! I was reading his discharge letter,because I had asked early about blood results,only to find his HB read 75,eventually I spoke to a doctor,and was told to go straight to A&E for emergency blood transfusion !!! 2.30pm
On arriving cross match taken wheelchair job to another unit,only to be told,no wrong unit,go back to A&E,still waiting at 7pm until bloods came,left Slim there with the knowledge he would have 2 units 3 hour job,arrived at 9pm,he was still on first unit,when I queried this!!! A doctor gave us a lecture on the NHS,instead of explaining why no one had told us it would be a six hour job for bloods!!!!,not a happy bunny.
As I pointed out ,he would have been better either admitting him,or coming in the next day!!!!
They then moved him to another ward,still to be discharged when blood finished,we eventually left at 12.15 am and arrived back at home at 1am.
No apology,no explanation ,so now I have a very tired husband,with a chest infection,who was treated as if it was all his fault.
I know from previous complaints are air brushed away,and it’s very sad,because there are dedicated staff there.
To treat a very sick person to that ordeal is so so wrong,this all took place in Canterbury Hospital.,
Now that’s what you call a WHOOPS Andy.Love Eve.
Well you guys are really going through the mill – I feel like a fake when I have my few problems. However, I know what you mean about the difference in treatment. Andy’s is excellent through to Slim who is wasting every-bodies time you would think.
Recently I had a pain in the leg my wife dialed 111 and we were asked to go to hospital to see the 111 doctor (they have a separate section), distinctly got the impression they were the second string! The Doctor examined me and took my temperature and declared I had a temperature and she was sending me to MAU (Medical Assessment Unit). Point here is I had just taken my temperature and it was normal (her thermometer was up the creek as was most of the rest of her kit). I think the hospital had given her all the second hand kit!
At MAU I was clearly treated as a time waster and made to wait, I ended up sleeping in the waiting room by putting some chairs together. Eventually, about 2 in the morning, I saw a Doctor and was sent home to await a Scan that day. The scan showed a DVT behind my knee big attitude change from everybody lots of apologies for last night etc..etc…
The irony of all this is if the 111 Doctor’s thermometer had not been faulty I would have been sent home without any treatment!!
Kindest regards – vasbyte
David
Hello Andy EVE and david
my every sympathy to you all Andy you hospital sounds on top of things thank goodness cannot say the same of yours Eve and David its a big worry to me what sort of care I will get if I need the hospital again it was pretty good last time but who knows who you will
get another time it seems a bit of a lottery get well soon all of you
REGARDS jO
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