[PerkymiteParticipant]

Hi Andy,

I am a Guinness drinker, not a great deal nowadays but I like a couple at the weekend, welllll perhaps more than a couple;-) . Whilst in Hospital, having my neck sorted out prior to starting Radiotherapy and Chemo (CDT) , the Senior Pharmacist came around to check on what medicines I was taking and was I taking them correctly. I specifically asked about alcohol. His answer was that the drugs I was on placed no restriction on Alcohol and I have had my Guinness, and a few glasses of red wine, all through my treatment.

Kindest regards ? vasbyte

David

[HelenParticipant]

Hi all
Yes I was told alcohol was permitted but not stonking drunk! Since being on the revlimid though I can't bear the taste, it feels like its laced with chile and burns, but I'm keeping on trying, on a weekly basis….. The taste has to come back….:-(
Helen with cup of mint tea in hand…….

[andygParticipant]

Thanks for all your input into the alcohol question. I will see how I get on with revlimid before I try some beer but hopefully I'll be ok because there's a beer festival at the club over Easter weekend and I wouldn't want to miss it.

[url=http://www.freesmileys.org/smileys.php][img]http://www.freesmileys.org/smileys/smiley-eatdrink055.gif[/img][/url]

Dai my wife comes from Nottingham and we go to the beer festival there most years – last year there was over 800 beers to sample! Sadly I didn't manage them all. I enjoy a pint of Reverend James when I can get it. The club I go to usually has 3 guest ales on and tries to get new ones every week.

[url=http://www.freesmileys.org/smileys.php][img]http://www.freesmileys.org/smileys/smiley-eatdrink005.gif[/img][/url]

Cheers – hic
Andy

[eveParticipant]

Hi Everyone
Slim had not had a drink for 17 months as it all taste awful and he was a drinking man,tried on a number of occasions but no go.

Then he tried some port with his cheese and biscuits,loved it.Now an occasional white wine,but still does not like his bitter any more or red wine so all the more for me. lol Eve

[kaychappersParticipant]

Hi Andy. Can't help out on the alcohol as I don't drink. But on the pp level I went down from 38 to 20 on CDT then plateaued. I went in for harvest After first day of harvest consultant came round to say pp had gone back to 34 in 3 weeks and sent me home to be put on velcade. Plateaued again at 18 but they put stem cells they had collected at 34 back in me. 6 months on and pp is at 18. Consultant not worried as I am no longer anaemic and making healthy blood. She keeps telling me it's individual and just a number. Good luck kay

[andygParticipant]

Hi Kay
Thanks for your reply it has given me a lift knowing your pp's where high and you still got a decent result from sct.
I haven't actually drank hardly anything since Christmas and I can't say I've missed it. It was good to go out Saturday just to feel "normal" for awhile.

Cheers 😉
Andy xxx

[DaiCroParticipant]

Hi Andy, I love your smileys.:-D

To my shame I didn't know Nottingham held a beer festival.:-0 When/where is it held? We live in a village in the Vale of Belvoir… a few miles north of Bingham and equidistant (12 miles) from West Bridgford and Grantham. We skirt around the city to get to City Hospital and only pop in to the main shopping areas about every 4th visit.

Choosing my guest real ales was an eternal joy… usually done about 11pm with 2 or 3 friends (and real ale gurus). We would end up with one for me and one for them… but occasionally I would let them choose both (meaning my choice concurred with theirs).;-)

The amount of research (laptops, CAMRA newsletters, books etc.,) was ridiculous… but it became a ritual that made grown men very happy… like kids being let loose in a sweetshop. Although the chocolate stout was a mistake never to be repeated.>:-(

Dai.

[andygParticipant]

Hi Dai
The beer festival is held at Nottingham castle mid October last year it was a week after Steph and I got married and 10 days after my diagnosis. This years dates are October 11th – 13th inc. They're aiming for a thousand different beers this year :-0
Hopefully I'll be fit enough to go 😉 I've been a member of CAMRA a few years now.
Steph still has her house in Nottingham and we pop down regularly, well when treatment allows, and go to Grantham to see her dad so we pass your way quite often it's a nice area.
My consultant worked in Nottingham before she moved up here.
Might bump into you at this years festival.

Cheers [url=http://www.freesmileys.org/smileys.php][img]http://www.freesmileys.org/smileys/smiley-eatdrink004.gif[/img][/url]
Andy

[Author]

Posts