[CloverParticipant]

He has had the beginnings of stem cell therapy with one massive dose of chemotherapy and keeps being sick in the morning, he wasn’t sick on the velcade so does this mean that this treatment is not suited to him? he has also lost his appetite?  Does it mean the kidney failure is coming back as the sickness is not every day? I’m fed up now which sounds horrible and i’m not even the one going through it.

[dickbParticipant]

Sickness is normal, I assume they have given him Mephalan which is very very strong. I was sick for nearly two weeks straight after the mephalan. His medical team will be very experienced in this and so will be looking after him.

[CloverParticipant]

No hes not in hospital they are doing this stage at home and goes back in on tuesday to collect the stem cells. Are you meant to be in hospital during this stage?

[dickbParticipant]

I’m afraid it was slightly different for me as I live abroad. Here they always do it in Hospital. I believe a number of UK hospitals do the Chemo as an outpatient and then when the white blood cell count drops, they are admitted.

[jcr2468Participant]

Hi

I was very sick when i was given Melphalan before receiving my stem cells. However as I was in hospital for the whole process it was easier for the nurses to give me anti sickness injections.

I would ring the hospital ward and ask about some stronger anti sickness to get him through this

Hope he is feeling better soon

Julie

[SuelParticipant]

Hi Clover, I had my treatment at the royal in Liverpool. Chemotherapy and stem cell collection where all done as an outpatient, I think I’m right in saying they will only collect on Tuesday if there ready. They will do your dads bloods first to check. Try not to be fed up, you will get through it.

[rebeccaRParticipant]

Hi there Clover, sounds like you’re dad is at the “harvesting” stage to collect his stem cells prior to the SCT. The chemo given for this stage is generally cyclosphomide and this chemo drug is known for making you sick/nauseous and a common side effect is loss of appetite – so don’t worry. The hospital should have given him some anti sickness pills to use at home when necessary. I wasn’t in hospital for this stage either which I believe is common. The next stage should be some “growth” injections to over produce stem cells ready for your collection next Tuesday. Be warned when the body starts over producing stem cells your dad may experience bone pain, which is normal and often taken as a sign that it is working. Paracetomol generally does the trick. The pain came in waves for me and went instantly once harvested. This is the beginning and easiest part of the whole SCT process so your dad will need you to be strong and extremely positive throughout. It is as hard for those “around it” as much as it is for those going through it but it is so important those “around it” exude positivity because it’s a difficult time/recovery process with lots of ups and downs. Best of luck,

Rebecca

[CloverParticipant]

Yes he is being treated at the Royal and not taking his anti sickness medication at the moment not sure why. been told not to worry now by my mum and not to fuss

[tomParticipant]

Hi Clover

well I think its all ben covered by the great posts above.

Its a roller coaster of a ride for your Dad am sorry to say but he will get through it, you all will, you dont say how old your Dad is ? nor how old you are ?

Good Luck to your Dad on his road to remission.

Tom Onwards and Upwards xx

[Anonymous]

Although a stem cell transplant is an effective treatment for several types of cancer, it can cause a number of different side effects. It is important to report side effects to the healthcare team and will take measures to prevent and quickly deal with side effects.

 

[dickbParticipant]

mmm, third post in succesion that refers people to myelomacrowd. Though no doubt very useful, do they have more info than Myeloma UK?

[andygParticipant]

Hi Richard.
Seems MichelleW is pushing the myelomacrowd quite a lot. Seems to be an American site.
I’ve not read much on there so can’t comment on its content though it’ll inevitably be more skewed to the American health care system if it is an American site. Guess I’ve got some reading to do 😉 hopefully it’ll be another valuable resource.

Every day is a gift

Andy

[Author]

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