[PerkymiteParticipant]

Hi Guys and Gals, I have just received my follow up letter from my appointment on 24th Jan 2014. I have been on this game since 2009 and had all the usual stuff from Stem Cell Transfers to Velcade. I have never got below 2.9 Paraprotein, even after the SCT.

I have had 4 courses of Lenalidomide (revlimide) and to be quite honest whilst the Rev does not seem to give me much of a problem the Dex really plays havoc with my system. I started at 22.9 PP and it quickly went down to 3.9 and I was assured that it would probable plateau at that level.

I was amazed when I read my blood counts for the 24th: HB 108, WCC 4.0, Neutrophils 2.4, Platelets 207,

Paraprotein not detected

, Serum free light chains kappa 19, lambda 18.

Real good stuff after nearly 5 years. Wow Wow Wow.

Kindest regards – Vasbtye

David

[dickbParticipant]

Yahoo! Probably the best news you’ve had in ages. Hope you keep it up for a long while yet. Will they do a BMB to confirm?

[BADGERParticipant]

WOW David

wonderful news its what we need to cheer us up long may it last for you as they when the going gets tough the tough get going that’s you
Love Jo

[BADGERParticipant]

WOW David

wonderful news its what we need to cheer us up long may it last for you as they when the going gets tough the tough get going that’s you
Love Jo

[BADGERParticipant]

WOW David

wonderful news its what we need to cheer us up long may it last for you as they when the going gets tough the tough get going that’s you
Love Jo

[BADGERParticipant]

sorry David
didn’t mean to repeat myself x

[PerkymiteParticipant]

I haven’t volunteered for a BMB 😉 The last time I asked about a BMB I was rather given the impression that the hospital does not really believe in them and tends to stick to Blood measurements. We shall see what happens at the next consultation.

kindest regards – vasbyte

David

[CarolsymonsParticipant]

Hi David
How fabulous for you…I am so pleased…well done!

Carol

[MicheleParticipant]

Hi David

That’s amazing news and I’m very very pleased for you.
I thought I’d been doing well with 2 years of a “bare trace” reading, but your results are terrific!

Well done. You deserve such good news.

Love
Michele

[eveParticipant]

Hi David

So glad for you,are the putting you on maintenance ?????

The bloods are good too,just watch out for those horrible DVT,read that e mail,wait till the wife goes out, lol

Seriously glad things are near normal long May it stay that way. Love Eve

[HelenParticipant]

Well done David! Hope it stays like that for a very long time
Love Helen

[andygParticipant]

That’s great news David.
Let’s hope it stays that way for a long time.

Every days a gift

Andy

[meganjaneParticipant]

That is wonderful news David 🙂

Megan

[DizzylizParticipant]

Great news david! Long may it continue.

Love liz & kev xx

[jmsmythParticipant]

David what great news. Long May it stay there

Love Jean x

[Author]

Posts