2020

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  • #141230

    2020
    Participant

    Hi Deb
    Reading through your post has provided me with reassurance that I have done the right thing. I think I know how your feeling and I completely understand and glad my post may have helped you in some way. We live in Scotland so we are slightly behind in the move to ease the restrictions. I watch the UK news in horror and my anxieties increase when I see the crowds gathering as the lockdown eases. I think we are all at a point where we are re- evaluating our way of life. Covid 19 as awful as it is, has allowed me to identify that my husband needs more help than he has ever admitted to. I am taking a positive from the situation in that I now know what I need to do to support my husbands wellbeing.
    I hope you are ok and for what it’s worth don’t put too much pressure on yourself to go back at the end of June.I know as the weeks have gone on I have been more comfortable with my decision and I hope that has been the case for you. Reading the Posts on the forum has been invaluable to me in the last two months. Just knowing your not alone is a massive help.
    Take care and wishing you well.
    Margaret

    #141206

    2020
    Participant

    Thankyou Sue
    I really appreciate you taking the time to reply to my post. I hope you and your husband are well and that lockdown is going ok.
    Your comments have reassured me that I have made the right choice for my husbands wellbeing. I don’t feel so bad now that I hear your husband has felt the same. I have been torn between my duty to the people I care for and my home situation. I don’t think people realise the complications there are when a loved one has Myeloma and I can sometimes feel that work colleagues, neighbours and others think it can’t be that bad. I think the NHS shielding letter brought home the reality and the risks when you are living with Myeloma. My husband is relieved that I am at home but also he feels sad that I have had to stop doing the job that I love at one of the most crucial times for our NHS and social care. I really feel for my husband as he blames himself that things can’t be simpler.
    We will all need to get used to the new normal as the politicians keep saying.
    Take Care Sue, looking forward to better times soon.
    Wishing you all the very best.
    Margaret

    #141204

    2020
    Participant

    Hi everyone
    This is my first time using the forum. My husband was diagnosed in 2009. In 2015 he had his first round of treatment and stem cell transplant and is in remission. My husband suffered from Myeloma Kidney which has left his kidney function impaired. He is suffering from really bad fatique and his mental health is very poor at the moment.
    My worry about Covid 19 as I am sure it is for everyone, is getting quite overwhelming. I just wanted to ask you guys what you think of my situation and if in your experience you might offer some advice. I work in a care home and when my husband received his shielding letter I was so nervous that I decided to isolate with him. In my working environment there was no way I could social distance and the care home uses agency staff on a regular basis which was adding to my anxieties. I have been off for 4 weeks and I am beginning to wonder if I should look at changing my career. We have both tried to do as much as we can to have as normal a life as possible and I have worked around his treatments and health difficulties where I could but I just don’t know what to do for the best right now. Covid 19 isn’t going away anytime soon and I don’t want to return to work and put him at increased risk as a result. I would appreciate your thoughts. Thanks

Viewing 3 posts - 1 through 3 (of 3 total)