SarahHoward

  • Nope still all rush rush with me. I have a daughter with borderline personality disorder due to have my 2nd grandchild in June. Mum is struggling and trying to hide in the gin, I have a full time Job too runnng a block of retirement flats with increasing levels of residents with dementia which keeps me on my toes lol
    Other than that all is good…[Read more]

  • Great news for a great guy who was a great support when i all too briefly dipped in here a while back before life got way to hectic.
    Well done and thanks x

  • Thanks for your reply Jo
    Can i ask if you were on any drugs except what your GP would normally prescribe. Some sort of maintenance drug or something? Or do you get to be myeloma related drug free?
    Just trying to get a heads up as I know mum is fed up of feeling so lousy all the time and the hair loss gets her down terribly

    Love Sarah

  • A huge thanks to all who replied to my last post. And thank you for making me feel so welcome.
    Mum has made the decision not to have the SCT and i support whatever she decides but am now just wondering what happens next. Anyone have any experience with this. What options should be available?
    Want to be able to support her choices as best i can…[Read more]

  • Hi Liz and thanks
    Currently compiling a list of questions to ask as focus is a nightmare and always coming away having forgotten to ask something. My sister and i are there for mum for anything she needs but sadly mums own sisters and brothers seem to have almost forgotten about her. No phone calls no contact and its like she has become invisible…[Read more]

  • Thanks for the reply Liz
    Glad to hear you are doing well and long may it continue!
    Any advice on what questions we should be asking before making a decision about if it is right for mum?
    Thanks
    Love Sarah

  • Firstly thanks for the lovely warm welcome i have already received. Its like all of a sudden you are talking and people understand which is not something we have come across too much so far so a HUGE thanks for all thos that have taken the trouble to reply so far.
    Can I ask if those of you that have had the SCT needed someone at home to care for…[Read more]

  • Firstly thanks Sue and Helen for you honest replies. Please don't worry that you have told me the negatives. I am a very down to earth person who deals far better with facts than a make believe version. My first and foremost intention is to work out how best i can support Mum if she does decide to go through with the SCT and what we will be up…[Read more]

  • Wanted to ask people who have been through it what their thoughts are on Stem cell treatment.
    We have heard what the doctors say but to be fair they are not the ones who have lived it. So my mum who started CDT in July is now facing making the choice of if she should have the stem cell treatment and wants to know what it is like in realistic…[Read more]