Hi jean and frank,

Hope all is well with you guys and franks progressing onwards and upwards 🙂

Colin more on the onwards and upwards and downwards and upwards. We thought he had turned the corner…..does stuff too much and then 3 days sleeping! He has got really bad acid heartburn at the moment and feels really tired, oh and a sore…[Read more]

Hey Mandy

Did not join this thread early enough! Just wanted to wish you well with your sct 🙂 you've done great, especially since you were so anxious! We so hope you have a smooth ride and can be up and about soon to enjoy being a nanny….and the social life 🙂

Vicki and Colin x

Hi Dai and Tom,

Wouldn't that be great if that were the case :-). If I have a magic wand I'd wave this mm goodbye for all of us….sufferers and supporters :-).

What strikes me is that when I read about mm before Colin's diagnosis it was supposed to be an 'older' persons condition. People seem to be younger and younger :-(. Still on a…[Read more]

Hi sky blue

So sorry to hear of your news and your grans recent news. I truly believe this mm is genetic. I read and article about 18 months ago that talked about mm being potentially genetic. It's a truly horrible condition….I heard an interview on radio two today. Lord saatchi I think it was. He was quite downbeat about the progress for…[Read more]

Dan

That's wonderful news? Is that derriford in Plymouth? If so we are told that's one of the largest oncology centres in the southwest with a good reputation. You and your dad seem to be doing great. We hope you are feeling ok dan…..I was shattered when colin was going through his treatment and transplant so you must be tired too with exams…[Read more]

Hi jacqui and jeff

Just wanted to wish you all both all the best for your sct….it will soon be over 🙂

Vicki and Colin xx

Hi Helen

Can't give you advice on the treatment…..but glad you had a great holiday, and that you are gripping yourself and getting ready for this next course! Re work it can only be your decision, but if you feel you want to go to work, you are well enough to go to work and you can fit around your treatment then why not. Do you do part time?…[Read more]

Hi Sarah and Henry

Yep same as babs, we got counselling for Colin through the hospital and the stem cell nurse. Both of them were great….it really helped Colin and still. Does. Best route as they get what's going on x

Vicki and Colin x

Hi Dai

That's so of great isn't it :-). ? hope things go well for you with the treatment and even equally good you can see the grandchildren, do visits etc. great 🙂 why they didn't give you those gcsfs before I don't know eh?

Helen, how did you get that black eye? Glad you had a great time in Cornwall. Good luck with the treatment …..not…[Read more]

Hi Ali,

Hope your mum is ok….has she been on the cruise yet? Lost track!. Colin and I read early on the issues of revlimid and the secondary cancers…..it was a concern but during maintenance treatment we were just glad it seemed to be doing the trick!. However when it got to maintenance treatment Colin had other ideas about taking it as…[Read more]

Hi there,

So hope that you are able to progress this with the nhs. Colin's story of diagnosis was much more different and efficient. He went for a blood test on a Monday, phone call Thursday, follow up test flowing Monday, 24 hr urine test in the same week. A leaflet from the Gp following Colin's insistence suggested mm and then2 weeks on he…[Read more]

Hello Nicky

So sorry to hear of your loss. Mm is a very unpredictable condition and your brother so young. Our thoughts are with you.

Vicki and Colin x

Hello Linda,

You were brave taking part in a netball match! I haven't played netball since primary school, although I remember playing goal attack for many years and thoroughly enjoying the game. My youngest son is almost 21 and he is studying sport and coaching at uni because he wants to become a PE teacher. His main sports are football,…[Read more]

Hi Linda

It's really good to hear from other myeloma patients who have been in remission for a long period of time and who have been able to maintain a good quality of life after undergoing chemotherapy and SCT. It's great news you were able to resume,maintain and enjoy your employment for so many years without any problems with your bone…[Read more]

Hey Tom,

Thanks, glad you are still feeling good. You are a great support to all of us. Colin been good again today….did gardening! :-). Me running about after him fussing…..no change there! We did enjoy the sun and we did have some wine :-), after the yard arm.

Hope you and young bride Elaine had great weekend too 🙂

Vicki and Colin xxx

Oh dear

I have thought about Keith every day since Ellen's post…..we are both so sorry, condolences to sue. This illness is a b.

Cyber hugs to all

Vicki and Colin x

Hi Sarah Jane,

Try not to worry this is what happened to Colin too. First harvest failed miserably, second one even worse! Third go he had to have plerixafor injections as well as gcsfs! He just got the 2 million! It is distressing as we didn't know it could fail until the first one bombed 🙁

By the way the same thing happened with Colin's…[Read more]

Hi Dai

Well a bit of a rocky road…..but the gcsfs at last are a welcome boost and let's hope rockets those neutrophils. Your new consultant sounds very proactive, so lets hope she can come up with a cast iron plan. I can't understand why they don't just let you have another go at revlimid. You were hampered last time due to the c diff so I…[Read more]

Hi there,
Sorry to hear about your mum….I wonder if its to do with platelets? The medical teams are great and checking out what the cause is and we hope she will be on the straight and narrow soon 🙂

Vicki and colin x

Hi Clare

Don't have any experience of brats but my partner had sct last November 2012. He was very poorly no doubt and it isn't pleasant, but he got through it. He is still recovering and gets very tired however we were scared before hand. We went for it because it was Colin's final decision and I supported him. I wouldn't say it's easy but any…[Read more]