Dear Dai

I have just been reading on this site's myeloma home page the summary from the 14th International Myeloma workshop, held in Japan, which states how Pomalyst is effective for relapsed and refractory myeloma patients who have been through a number of treatments – which I am sure you know quite a bit about this new drug.

Apparently…[Read more]

Hi rob,

It's a long hard road, for your mum and the family, but don't give up…..search for every option as long as your mum is willing to go for it! Where there is life there is always hope. 🙂

Vicki and Colin x

Blinking eck Dai, you must be really cheesed off and that's an understatement and don't blame you!!!!

Gcsf was given to Colin a couple of times during his induction treatment when his neutrophils were a bit low. He never missed a treatment but might have been delayed a week. There is so much inconsistency between hospitals and given what's a…[Read more]

Hi Debs

One of my main symptoms before being diagnosed with myeloma at aged 52 was flushed cheeks, sweating and hot flushes on the upper part of my body. When we went to Majorca the year prior to my diagnosis of myeloma, the icy air conditioning in the hotel was a complete bonus for me but my family were sleeping under many blankets to keep…[Read more]

Dear Dai,

I am so sorry to hear about your current situation. It's certainly a serious issue which will no doubt face a lot more of us when we have tried various different types of treatments for myeloma. It must be a considerably anxious, stressful and worrying period for both of you as well as your close family. I would also feel angry and…[Read more]

Good luck Ann, Peter, jean and frank…..fingers crossed for all of you.

Peter has done well to be going back to work but be so so careful,as colinn has overdone it and he is shattered now, having worked 3 days at work and 2 at home each week from 2.5 months. This tiredness seems to be going on and on and like you guys I am very wary and do…[Read more]

That's a nice thought Ali, the present is a gift ! How's your mum doing? Colin is really knackered, he's been to work each week since 2.5 months for three days each week and its now telling….he's been exhausted for 3 days on the trot. I feel very nervy about it as he doesn't look that well either 🙁

Hope your mums doing good, have to be…[Read more]

Andy and steph

That's great great news 🙂 🙂 :-). It all started off with that holiday in Greece last year! ……one more holiday to Greece and that extra sunshine will see those pps knocked into touch! It's been a log slog for you, enjoy those drinks 🙂 🙂

Vicki and Colin x

Thanks jean,

You have made me feel better! Glad to hear that frank is eating a little more and the weight gain! One thing has never wavered throughout this and that's the interest in man united and long may that continue 🙂

You take care both x

Vicki and Colin x

Hi Dai,

He had his sct 3 rd November,came out 25th November, had a virus at Christmas. He returned to work part time about 22nd February 2013 and has either been working from home some days and going into work others. He has days when he is full of beans and the he goes into one of these dips where he is absolutely washed out. No maintenance…[Read more]

Hi jean

Hope frank is doing ok and maybe eating a little more food…..Colin is struggling with some food but overall doing very well! He is feeling pretty rubbish at the moment,he feels sick and has no energy at all, as I said in another post I always think its myeloma there….still I must try not to panic!

I've been promoted at work and…[Read more]

Hi all,

Yes it's good to feel you can help someone with a bit of morale support, good story or not so good. This is a scary journey and we all need the support from someone, so good health to Keith, Scott's, Dai, and everyone who is going through this journey.

I'm on a negative one as I am worried cos Colin is so so tired, but maybe that's…[Read more]

Hi Andy

Great to hear how you are doing….dex or no dex! Hope that the tinkering with the back will give you some relief!. This pain no gain thing wears a bit thin after a while doesn't it! We hope that you and steph have a great time I. Greece and those pps go in the downward direction after that sunshine 🙂

Like your mantra every day is…[Read more]

Hi jean and frank,

Glad to hear frank is out of hospital and things look to be progressing well…:-) patience is the key here and things will get better slowly but surely. Glad to hear you are feeling chipper too jean.

Colin is very very tired at the moment….he seems to do things and then is wiped out with exhaustion for three days, not…[Read more]

Hi Gill

I lost my mom almost a year ago to acute myeloid leukaemia (AML). She was unexpectedly admitted to hospital with a high white cell count and diagnosed immediately with AML. Unfortunately, she died ten days later due to a fungal and viral infection in her lungs. She was treated on the same ward/same hospital as my myeloma treatment…[Read more]

Hi jean and frank,

Just thinking of you both, how's it going…..is frank out now 🙂

Vicki and Colin x

David,

Just wanted to say good luck with the second line of attack….keep your chin up 🙂

Vicki and Colin x

Hi jacqui and jeff

That's great news, 3.2m is great, Colin only got 2.1m so only just over the bar! At least jeff has the cells in the bag! Whilst you are away jeff could always post on the forum to keep his nerves at bay 🙂 we could give that bit of support! You enjoy your holiday jacqui as you'll need all your strength for the rest!

Be…[Read more]

Hey guys

So pleased to hear you got the white white going Peter! That's a result….toms our resident expert on the vodka hey? 🙂

Go for it …..Colin seems to have got his taste back for white, not red and has had 3 glasses tonight…..now dozing off, pretty as a picture 🙂

Keep well all x

Hi there and welcome to this club….but not really wanting to be a member!

My partner Colin was diagnosed in October 2011, resulting in an sct in November 2012. Prior to the sct he was on induction treatment of revlimid, cyclophosmahide and dexamthazone. He had 7 cycles of that and then a couple of availed stem cell harvests, the getting just…[Read more]