Oh Eve, you've made me chuckle thinking of poor Slims "vision" in cowboy boots! 😀 Thank you for the reminder, and also thank you for thinking of us.

Heavens, what a time we've had here at home. I can't tell you how relieved I was when we got told there was a bed at the hospice for John – isn't that awful being so happy to send him…[Read more]

Oh Dai, how sad …. I've come over all emotional.

Well you really do know how to pen a good song don't you?! Lovely lyrics, so emotional with so much feeling too. You've touched a nerve with me tonight.:-/

This puts me in mind of John a couple of weeks back – he'd completely lost his marbles and had flown off to Fairyland without me!…[Read more]

Hi Norman

3 years ago we used Age Concern to get John insurance to fly to Florida for 2 weeks holiday. Other companies wanted around £2000 and some wouldn't insure him at all. Age Concern however wanted a fraction of that at around £120 so they'd be worth a shot too.

Good luck, its frustrating but worth shopping around.

Angelina xx

Ahhh, bless you Bridget. I am so sorry to read of the loss of your father-in-law. I agree with what you say of MM – yes, there is time to gather thoughts and wishes versus some other cancers that cause such a rapid decline sometimes soon after diagnosis.

I can't imagine the emptiness your mother-in-law will be feeling after all those years of…[Read more]

Awe bless you all Bridget, what a poor soul and what a rubbish situation to be in.

I'm sorry about your father-in-law not being able to get home to spend his final days, I agree with you, its maddening that the decision is taken away from him, very sad indeed … this also happened to my father-in-law – we decided that if he couldn't go home…[Read more]

Hi Gina.

Oh dear, your poor mum must feel really washed out just now, bless her. Her lack of fluids will have likely caused the low blood pressure – my John had terrible diahhorea a few weeks ago so he was also admitted to hospital for IV fluids, he passed out on the ward and thats when they discovered his blood pressure was low just due to…[Read more]

Oh dear, bless you … Eeyore, 😀 it was Pooh that got John 😛 lots and lots of Pooh! >:-) on his cycle 2 of Velcade.

It certainly is a harsh drug Dai, but heavens the results seem to be fantastic if your body can handle it. I do hope you'll soon be feeling like your old (or new) self soon.

You are such an inspiration, always finding the…[Read more]

Awe, what beautiful words, I genuinely mean that. I've read them over and over taking them all in.

with love
Angelina xx

Yay!

Love your songs Dai … I agree with Jo, please do keep them coming … they brighten up what is usually a bit of a dreary day. Bless you, you have quite a talent.

Sending healing thoughts and love
Angelina xx

Sending you both lots of good wishes Min …. crossing my fingers, toes and eyes for you too that all runs smoothly.

I've had the doctor out 3 times today for John – he's refusing admittance to hospital, although he is on the waiting list for a bed at the hospice. Wish he would do just a little to help himself a bit – needs to take a page out…[Read more]

Wishing you a wonderful time David!

Wow, what an adventure. Best pack your winter woolies for Edinburgh, its like autumn up here just now, even for us "chooghters"!

Take care of you and yours and be sure to report back when you're safely home.

Sending healing thoughts and love
Angelina xx

Hi Eve … interesting question about being in the forces having a bearing on MM and/or amyloidosis.

John was in the Navy!

I remember 4 years ago reading on this forum about a gentleman who thought navy related fuels were something to do with his diagnosis of MM … a few others had put in their tuppence-worth and the common thread seemed to…[Read more]

Excellent news David, I'm glad your sensitivity is fading … big T-bone steak on the menu for you tonight then, followed by something nice and cold?!

My John has terrible teeth since being diagnosed with MM … actually don't know if its the MM or just his age (I'm saying that with a tentative screwed up face!). His teeth have been crumbling…[Read more]

Oh Dai, I've almost wet myself laughing at your expense! Bless you. What a picture you paint in words – I must try the hoop thing with John and see how that goes with his "whole body super-twitch" although I don't think my hands are quick enough to make the gap!! 😀

Jen, you are right about doctors over-prescribing drugs. John goes between…[Read more]

Holy Moly Dai, your song is brrrrilliant!! I loved the lyrics when I read them mid-week and love the song now that I've heard it too. Clever you, again well done to you!!:-D

I for one will happily stand in line for my copy, I am very fond of country … went daft a few weeks ago when Gold Radio had a Dolly Parton concert ticket competition…[Read more]

Thanks Bridget, Eve and Min …. your reponses have put my mind at rest.

Oh Bridget, some mornings I'm completely exhausted … John on the other hand seems completely unaware that he's been jiggling about. I try to pretend that I'm on a bumpy train or car journey so I don't notice the matress shaking so much and its less of an issue. I also…[Read more]

Evening Min

I held my breath whilst reading your post just now, I can feel how tense you are bless you. This disease has so many twists and turns, its impossible to predict whats coming next.

Firstly I'm really pleased Peters recovery plan is beginning tomorrow, the sooner the treatment starts the sooner you'll have him well again. It does…[Read more]

Bless you both Min.

I'm so sorry to read of your desperation. From reading the others posts it appears there may still be options available to Peter. The saving grace is that he is feeling well at the moment and long may that continue. Don't give up, you've come through too much to throw the towel in now … keep fighting and remain positive.…[Read more]

Ooooooh, so mysterious Dai! I love it! What an honour that you've shared your first pending "novel" with us, thank you.

Hope the publishers don't keep you hanging around too long before they get back to you …. did you put a spell on them?!

Sending lots of positive energy your way and crossing my eyes, fingers, toes and legs for a…[Read more]