Hi Alastair, how are you?

Have you just been diagnosed with MM? If so, then you'll have loads of questions flying round your head.

You may have already read through the posts here on the forum, in which case you'll see varying stories both about illness, side effects, treatment and ofcourse we're all in different areas/hospitals too. Its…[Read more]

Well said Jet!! I couldn't agree more.

I love your "spring clean" of friends. Its very true indeed that you find out who your "real" friends are when something bad happens in life. John lost many so-called friends along the way … but its no loss really, they were just "hangers-on" as my mum would say. The friends that have remained faithful…[Read more]

Hi Roberta

Awe bless you, I'm so sorry you are having such a rubbish time with your "outlaws". Please, please don't apologise for rambling .. good heavens thats what this site is all about, we support each other in whatever way we can … we don't always have the answers but a good set of eyes and ears and a bit of understanding too.

I can…[Read more]

Hi Bridget
Oh I'm so pleased you have had contact with MacMillan, they are absolutely wonderful earth angels! The nurses up our way have a wealth of knowledge on so many topics likes of benefits and grants, support and counselling, and ofcourse coping with pain, discomfort and daily goings-on.…[Read more]

Ha Ha …. you were the first person I thought about Tom when we were offered the stairlift – "onwards and upwards" right enough, and every time it'll be used … unless for "onwards and downwards" 😀

Yeh, the toilet sounds wonderful – I'll never leave the house again!! I can see us all fighting over it already, will need to issue a rota…[Read more]

Awe bless you Scott, thanks for replying.

What a rotten time you've had. I do hope your health continues to improve … sometimes the treatment can be worse than the illness itself.

Reading your story was like reading my Johns story. His kidney function is also poor, his back in a state although his 7 broken bones were cemented through…[Read more]

Oh good heavens! Wow Dai, I'm completely blown away … not just about the coincidence of my name in your song, but how wonderfully creative you are. I LOVE country music also, yay. My parents used to listen to it when I was just little so it always fills me with happy comforting thoughts.

Hand on heart, well done you!

I also found it quite…[Read more]

Thank you Tom and Bridget for your supportive messages.

I've had John home from hospital for a week now – you could have knocked me down with a feather when he told me he was being discharged!! Only 2 days prior the MacMillan nurse had said the nursing team were very busy with him, he needed a lot of support and so he was a long way from home!?…[Read more]

Love it Dai!!

Wow, you have so many talents. Your lyrics are wonderful, deep and meaningful. The girls and I absolutely love angels, we've got dozens upon dozens of books, ornaments, nik-naks etc, so anything involving angels is a big thumbs up from us.

I love your attitude too, you are a real inspiration, bless you.

Sent with love and…[Read more]

Hi Dai. Awe, bless you. I'm sorry you are experiencing discomfort and have become locked in the prison of pain.

All I can add is that John managed 2 cycles of Velcade before all the problems started. Prior to the diahhorea etc. he was coming home from hospital after his injection thinking it was all a big joke as he had no symptoms whatsoever!!…[Read more]

Evening Dai!

Wow, what a wonderful team you have working with you – so quick to act on your wonky bits. I'm so pleased for you that they've already got a plan in place. Velcade will most definitely "get it" I'm sure, its quite a nasty beastie!!

Fingers, legs and eyes crossed there is no suspicious wonky bits lurking, though if there is then…[Read more]

Awe bless you DMC, thanks for your kind words.

I'm soooo pleased your SCT has gone well; John was never well enough for it so its always been out of the picture – his consultant had also told us how awful the treatment is so I take my hat off to you for getting through it. May you continue with good health for many a long year!

John had a…[Read more]

Awe Gaye, bless you. What a rough time you're having.

Hope you get some good news on Thursday with the surgeon, anything that will help is a big step in the right direction. Comfort is paramount so do what you have to do for a bit of relief if thats at all possible.

Sending you healing thoughts meantime.

Much love,
Angelina xx

Thanks Dai, I'll have a wee look at this in the morning. Looking forward to it already, I like to know whats heading our way.

Many thanks
Angelina

Bless you David!

Thank heavens for people like you – you always make me laugh out loud!!

You have the most wonderful, positive, light-hearted attitude to life, its so refreshing and brings a big smile to my face. I love your spirit.

…. and yes, I am impressed that you know the date of your anniversary! 😀

With love
Angelina xx

Awe, bless you David, thank you for your kind words.

John and I met with his consultant on Monday this week, well it was with the head of the department to be precise. I mentioned the Velcade Sub-Cut to him; quite funny really …. he looked at the MacMillan Nurse ….. she looked at him …. frowning faces … eyebrows raised, dropped ….…[Read more]

Awe bless you Dai, what an absolutely beautiful message – I've got goosebumps all over. I'm sure those who have lost someone dear can relate to every single word, you have truly spoken from the heart.

Much love,
Angelina xx

Just want to say hi Ali.

As everyone has said before me – this site is absolutely tremendous! You'll get more help, advice, support and answers here than some consultants can provide. I have recently returned after a 3 year break. We're all more or less in the same boat so lean on each other in times of need.

I care for my husband John,…[Read more]

Excellent news Eve!!

How wonderful you've got Slim back home safe and sound, what a relief for you all. Now you can pamper and care for him the way you want to and at your own pace without restrictions of visiting times etc. You must be absolutely exhausted carrying so much on your own shoulders these past weeks. I know its not a burden, we…[Read more]

Phew!! This is fantastic news Bridget … what a great week for good news for everyone. Yay!!

John used to take MST and Severedol (I think thats what you take isn't it?). Those were stopped a few years back as his pain was so bad.

Fentanyl patches have worked great for John, took a bit of jiggery-pokery to get the right strength for him;…[Read more]