AmandaMorgan

Forum Replies Created

Viewing 4 posts - 1 through 4 (of 4 total)
  • Author
    Posts
  • #118285

    AMorgan123
    Participant

    Thank you Sharon for all your tips. I will definitely take them all on board. Sending lots of (((HUGS))) for your chemo journey and hope that you get your energies back soon.

    As I have so much stuff, and a first minor step, I will be supplying/selling some items at the Myeloma UK Charity Bazaar being held this Sunday (28th) between 1-4 at Whitehaouse Avenue, Wolverhampton (all are welcome if you’re in the area). There’s a bring and buy sale, raffle, refreshments, bouncy castle, face painting and beat the goalie (picture attached).

    It’s true that we all seem to gather a lot of stuff over time so I will then look at doing more car boots to raise more funds re-home those items I don’t need (not really being noble though).

    I will let you all know how it goes. XXX

    I too have purchased Christmas cards and wrapping paper from the Myeloma UK site – can’t believe how fast this year has gone.

    #94333

    AMorgan123
    Participant

    FYI: information taken from:

    http://www.adviceguide.org.uk/nireland/healthcare_ni/healthcare_nhs_healthcare_e/nhs_patients_rights.htm#DischargefromhospitalEnglandWalesandScot

    Discharge from hospital
    In England, you should not be discharged from hospital until your care needs are assessed and arrangements made to ensure that you will receive any necessary services when you are discharged.

    Any assessment should take into account your wishes, the wishes of your family and of any carer. You should be kept fully informed and involved, be given sufficient time to make decisions, and be told how to seek a review of any decisions made. You can ask for a reassessment of your needs if circumstances change in the future.

    Unsatisfactory arrangements before or after discharge

    You may not be satisfied with arrangements for your discharge from hospital because, for example:

    you feel that you need to remain in hospital for further in-patient treatment
    you are not satisfied with the community care services that have been arranged for you when you are to leave hospital
    you do not want to be sent to a care home.
    Before discharge takes place, you, or your family, carer or representative, have the right to ask for a review of the decision which has been made about your eligibility for continuing NHS care. In England, you can also ask for a review after discharge.

    If you are not satisfied with arrangements that have been made for you after you have been discharged, you can complain. If you are not satisfied with any medical services you are receiving from the NHS, you should use the NHS complaints procedure. If you are not satisfied with community care services which have been arranged or provided by the local authority, you should complain to the local authority using its complaints procedure.

    If you are unhappy with your discharge from hospital or with the arrangements made for you after discharge, you should consult an experienced adviser, for example, at a Citizens Advice Bureau. To search for details of your nearest CAB, including those that can give advice by email, click on nearest CAB.

    For information on making a complaint in England, see NHS and local authority social services complaints. In Northern Ireland, see HSC complaints in Northern Ireland.

    #106497

    AMorgan123
    Participant

    Hello Lorna!

    This is fantastic news (the fact that you live so close, not the illness) 🙂 .

    I'll send you an email with my contact details and we'll set up a get together.

    I look forward to meeting with you soon.

    A. Xxx

    #86637

    AMorgan123
    Participant

    Thanks all for the great welcome.

    Just an update on Bobs' progress.

    Bob starts his 3rd 28-day cycle of medication today.

    He's in good spirits and very little pain as he's on full dose morphine, oral morphine solution and paracetamol.

    The Myeloma XI trial is going well and the 4-weekly Zometa infusions are working (although they still knock him about for a couple of days afterwards).

    At our next hospital visit he'll also be meeting with a consultant to discuss radiotherapy treatment for the pain in his right side, so we'll find out how many treatments at the QE he'll need.

    Overall, his numbers are improving and his pain is under control. We just have to counteract the fatigue and reduce the risks of infection so he doesn't end up in hospital AMU again.

    Things are still very positive. Xxx

Viewing 4 posts - 1 through 4 (of 4 total)