David well done you! That’s great news, your positive attitude is definitely the extra boost that follows the drugs. I truly believe the success stories are the inspiration we all need to keep going …..perhaps also a little vodka? 🙂

Vicki and Colin xx

Hi Andrea

Just wishing you all the best with your treatment , positive thought is so important, hard to do but keeps your chin up. Hope all goes well for you

Vicki and Colin xx

Oh Andy,
Sorry to hear you are going through the mill a bit. This myeloma is such a bugger…..affecting the blood is one thing but when it affects the bones ic completely another and that’s the real low baller of this damn disease. Hope things are starting to improve a but now. How come they didn’t spot the collapse coming?

Hope stephs ok too…[Read more]

Hey Tom,

Just picked up on the thread, glad you are doing well and feeling ok, there is no doubt about it, you are an inspiration. I will never forget the support that you gave Colin and I when we joined the site and continue to do, for us and all of the fellow cyber friends. Any idea when the next sct is? I might have missed it because I still…[Read more]

Hi all

Jus to chip in on the travel insurance. We insured with nowicantravel. They were great, very sensitive with the questioning and covered the myeloma! We have been back a week now, following two weeks in mauritius. I felt secure as we had good cover for us both! That said I can definitely confirm take the thermometer and antibiotics when…[Read more]

Hi Jo and eve,

Sorry to hear you both (and slim) are having a rough time.myelomas hard but when there are kidney issues as well it must be a real burden! It’s funny how we all float on in life until this Big Bang myeloma rears it’s ugly head…..don’t know bout you but I’ve forgotten what life was like without it!

Hoping that things improve for…[Read more]

Hi there

Sorry I have never heard of this either. Good news though that they caught your dad early and they can monitor him 🙂

Vicki and Colin x

Hi both

Just tuned into this thread. Good luck to you both and keep positve. My partner had his sct in November 2012, we were scared witless before it started but we took each day as it came. He had good and bad days but achieved an full remission so keep your chins up. Did you have ice lollies when you had melphalan? It helps with the…[Read more]

Yes, seems ok now.

I take Dex k, 10mg per week on a Monday, with Revilimide daily. I used to take 20 mg but it was reduced to try to alleviate the side affects. I am normally up all Monday night – no sleep at all- and Tuesday can be patchy, some sleep during the day and some at night. The thing I feel really uncomfortable about is the under the skin crawlies.…[Read more]

Dexamethasone (steriod) is well know for its side affects. I used to take 20 mg on a Monday Morning. Results; could not sleep at all Monday night. I could climb mount Everest Tuesday – by myself, Wednesday/Thursday I would get grumpy Thursday night I was shattered, Friday Saturday and Sunday were near normal. then back to Dex on…[Read more]

Best of luck in your treatment Ange. Your feelings are just right, the road ahead can be up and down and bumpy at times but keep that attitude and you will be fine.

Kindest regards – Vasbyte

David

Best of luck Keith, Sorry to throw in a damper, I had 5 different types of mouth wash, most of them tasted fowl and I wanted to throw up when taking them. I had a real sore mouth for at least a week.

A cleaner, from Burma, came up with a good solution. she made me a build up milk shake with ice cream and fresh fruit – all made into a…[Read more]

My wife and I used Texting. We found it great for keeping in touch. We could say good night and good morning and lots of other silly little things people say to each other when they have had 50 great years together, whoops it was on 47 years when I had my SCT. Really recommend it.

Kind regards – vasbyte

David

Great results from the pair of you. I managed 1.8 on me first session and I had to have a second harvest to got the extra 200 needed for a SCT. To say I was relieved would be an understatement although SCT is not the be all and end all of treatment. Many people go on to enjoy a long and happy life without one – their are several on this…[Read more]

I have been on this site since 2009 and I have never heard of diffuse plane xanthoma being mentioned. Whether it is anything to actually do with Myeloma I am not sure.

Kindest regards – vasbyte

David

Hi Keith,

You are right that we are all at different levels and so the Knowledge is spread over the whole decease. You pick up the detail as you go on. The normal measurement is Paraprotiens unless you have one of the more specialised bone/ blood cancers when they talk about Bence Jones and Light Chains etc.. Personally I would not worry…[Read more]

Although I have only met one other person on here, with myeloma, from Somerset. I was told in 2009 that Somerset had a high incidence of Myeloma – unfortunately I cannot remember for the life of me where that came from. However, talking to my Doctor the other day he said he had 3 Myeloma suffers on his book. It is said that most Doctors may…[Read more]

How many pesky little blighters did you get?

Kind regards – vasbyte