Hi Megan, I did ask how many cycles I would be having and the reply was “until you have reached a plateau and can go no further then we will consider maintenance”.

Kindest regards – vasbyte

David

Hi there

I too was convinced that my Colin had been exposed to radiation. He had shingles then was just getting over it and went somewhere where I think he was exposed. He won’t have it but I’m not sure. However with caution I am the sort that I need a reason for something and I won’t ever make sense of this mm!

Vicki

You go for it Eve and have a good time. Try to put MM behind you and enjoy yourself.

Kindest regards – vasbyte

David

Blimey Helen,

I was just going to do an email to see how you were doing and If you had started treatment…..yep I can see that you have and that dex is doing its magic :-). I so hope we don't have to spend any time at hospital any time soon other than the 2 monthly check up! 🙂

Glad things are going reasonably well, and sorry for the other…[Read more]

Mary and Charlie

Paraproteins undetectable is good! Means the treatment is working 🙂

Vicki and Colin x

Gosh what a shocker Wendy, doesn't bear thinking about too much, lets hope there's some stability and right results soon xx

Vicki and Colin x

Hi Pauline and Marc,

Sorry to hear of your troubles….my partner Colin was diagnosed in October 2011, going on the m11 trial with rcd, after 7cycles went to zero pp and few light chains. He had an sct in October/nov 12. We have had our ups and downs…..Just when we think its ok he goes into a spiral of being absolutely exhausted etc. however…[Read more]

Ps I think Dai and Tom are superstars 🙂 too

Hi Andy and steph,

Glad to hear you are sunning yourselves in Greece….my money is on your pps being right down when you come back. It's the sun and the beer :-). But for now you guys have a great time 🙂

Hi Christine and chris….wishing you so much luck with chris.s treatment, there's alway a plan and always hope. You guys have really…[Read more]

Hi jean and frank,

Hope all is well with you guys and franks progressing onwards and upwards 🙂

Colin more on the onwards and upwards and downwards and upwards. We thought he had turned the corner…..does stuff too much and then 3 days sleeping! He has got really bad acid heartburn at the moment and feels really tired, oh and a sore…[Read more]

Hey Mandy

Did not join this thread early enough! Just wanted to wish you well with your sct 🙂 you've done great, especially since you were so anxious! We so hope you have a smooth ride and can be up and about soon to enjoy being a nanny….and the social life 🙂

Vicki and Colin x

Hi Guys, To qualify for the statement "remission" The consultant has to say it i.e. "You are in remission", otherwise the answer has to be no surely.

Rather hijacked Chris's posting here, sorry Chris. If we want to discus this further perhaps we should set up another posting.

Kindest regards – vasbyte

David

Well Ali it is nice to know that this has been properly researched 😀 😀

Kindest regards – vasbyte

David

Yes, See attached photograph. Pity our native Bluebells are being destroyed by the Spanish/Portuguese hybrids, They have no scent!

It is great Slim is getting out, keep up the good work Eve.

Kindest regards – vasbyte

David

Hi Dai and Tom,

Wouldn't that be great if that were the case :-). If I have a magic wand I'd wave this mm goodbye for all of us….sufferers and supporters :-).

What strikes me is that when I read about mm before Colin's diagnosis it was supposed to be an 'older' persons condition. People seem to be younger and younger :-(. Still on a…[Read more]

Hi sky blue

So sorry to hear of your news and your grans recent news. I truly believe this mm is genetic. I read and article about 18 months ago that talked about mm being potentially genetic. It's a truly horrible condition….I heard an interview on radio two today. Lord saatchi I think it was. He was quite downbeat about the progress for…[Read more]

Dan

That's wonderful news? Is that derriford in Plymouth? If so we are told that's one of the largest oncology centres in the southwest with a good reputation. You and your dad seem to be doing great. We hope you are feeling ok dan…..I was shattered when colin was going through his treatment and transplant so you must be tired too with exams…[Read more]

Hi Peter, for 12 months world wide travel insurance that is very good I think.

Kindest regards – vasbyte

David

Hi Lisa, Sorry to hear about your Dad, 56 is so young for this Cancer.

Since 2009, when I was diagnosed, this subject has raised it's head several times. From the posts "the Consultants" seem to firmly place themselves in the non-hereditary camp. Whilst Patient's raise patterns within their families. It could be that we the Patients are…[Read more]