Hey Tom

Hope you are feeling a lot better, can't get the imagine of the onesie out of my mind :-)you and Cheryl cold both would have one!!

Vicki and Colin x

Good luck on your 100 day assessment and well done for doing so well, so far 🙂

Vicki and Colin x

Hi Ann

Welcome to the forum, yes it's unbelievable! My partner Colin 56 was diagnosed in October 2011. In that year he did ski-Nig in the January, weeks golfing holiday in march (had shingles). May we went to Mexico for 2 weeks (kayaking, volleyball, tennis etc), July walking holiday to Cornwall…..back pain started early August and then…[Read more]

That is truly a lovely post Tanya. It was great that you could be beside him as he took his final breaths in this world.

May your God walk with you at this sad time.

My kindest regards – vasbyte

David
x

Hey Helen,

Focussing on all the ups…plateauing and only a few plasma cells…..that's got to be good. This could be a blip after all. You know what parking at work, a bloody nightmare….can't you get a medical bay space? Especially if you are in a lot of pain and walking a long way is an issue? No imminent change of treatment….that's good…[Read more]

Terry

I've just posted on your other thread. As the others have said…..give up if you feel you can and want to. I would say don't give up something to do nothing. If the classic cars are your idea of enjoyment go for it, keep focussed and absorbed. I'm a firm believer that someone having a purpose helps!!

Go for it

Vicki and Colin…

Hi terry,

I am 46 and my partner Colin 56. When Colin was diagnosed we thought our world had come to an end…..scared, worried, like a rabbit in the headlights. Is life a bit different, yes, we can't book a holiday at the drop of a hat like we used to, packing a bag and going away for the weekend at a moments thought. Nope, but I can say to…[Read more]

My Dear Tanya, I have tried very hard to answer your posting since you posted but I find these post so hard to reply to.

I hope Your Dad's end is peaceful and you manage to be by his bedside, that is all any of use can really wish for.

I like you believe in "something else" Nearly all religion's preach of one God and I have always believed…[Read more]

Andy

Thanks for your kind words, and I think I sing off the same hymn sheet as steph, anything out of the ordinary and it's 20 questions!!! You are doing a great job….maybe as Helen has said you just need beer and sunshine to sort this mm! Have a great time in Greece, relax and who knows pps down again…..maybe mm is giving up the battle…[Read more]

Good luck David, we sincerely hope this works for you, quickly and that you bin this mm into touch again….then you can enjoy the nice weather, your garden and enjoy the things you like to do.

Keep your chin up,

Vicki and Colin x

Hello Charlie and Mary

I would echo what everyone else has said, plenty of Dettox to continue to wipe over surfaces, handles, watchful of food dates and none of the likely problem foods, no prawns etc, eggs hard boiled. We were lucky in as much as Colin could eat reasonably well after wards but I made sure food was well cooked, probably too…[Read more]

Some really good sound advice there Mary. My wife went completely OT but I bless her for it. I even had my own food that nobody else was allowed to touch, butter, jams, bread etc… Everybody got vetted regarding colds in the last two weeks and all had to use the hand jel. All talked to me with a good two paces between us and nobody could…[Read more]

Hi jacqui,

No he didn't, we weren't told what his pps were before transplant, we assumed they were still zero. We saw dr Frewin before transplant too and she didn't seem worried about time delays then. I would ring Sian because she can reasure or get this moving. Dr Frewin freighted the whits out of us the way she described the transplant,…[Read more]

Hi all

And firstly sorry to hog this post as this is where Andy's great news is absolute paramount….so to finish off I can't thank you all enough for putting some words down to reassure, it made a hell of a difference 🙂 Tom you are always supportive, eve you are frank and wise, Helen as a nurse and fellow sufferer I trust your views, and…[Read more]

Hi Ali, Helen and all,

I was so pleased to read about Andy…it's great 🙂

Ali and Helen, I've been really worried this last week and can't say anything to Colin. Since he had that bad tummy just before Easter he hasn't been right. He went to work for 3 days on the trot after Easter and then last weekend he felt unwell and since then he has…[Read more]

Hi jacqui,

No one seemed bothered at GRH about time delays….Colin had treatment til mid July I think and then didn't have transplant til November and no one mentioned time delay…..still if they think its too long couldn't you go to Bristol if they do it there?

Vicki

Hi Jo

Sorry you have been poorly, hope you are on the mend a bit now 🙂

Vicki and Colin x

Oh Tom,

Poor you…wondered where you were as you are the mainstay….bet you got this chest infection due to lack of vodka 🙂 too expensive eh? You look after yourself and let young bride pamper you a bit. Take care

Vicki and Colin x

Hi Jean, I start on the 15th April.

You should defiantly go for Subcut (injection under the skin). My Consultant told me there is a major drop in side affects if Velcade is given this way.

If I am up to it I will post on the 15th under this heading and let you know what happened and how I got on.

Kindest regards – vasbyte

David