Hi Nikki, I wish your Dad the best of luck on his transplant. Make sure he takes anti infection procedures very very seriously when he comes out of hospital. Be ruthless about it for at least 3 months.

Kindest regards – vasbyte

David

Hi jacqui and jeff

That's great news, 3.2m is great, Colin only got 2.1m so only just over the bar! At least jeff has the cells in the bag! Whilst you are away jeff could always post on the forum to keep his nerves at bay 🙂 we could give that bit of support! You enjoy your holiday jacqui as you'll need all your strength for the rest!

Be…[Read more]

Hey guys

So pleased to hear you got the white white going Peter! That's a result….toms our resident expert on the vodka hey? 🙂

Go for it …..Colin seems to have got his taste back for white, not red and has had 3 glasses tonight…..now dozing off, pretty as a picture 🙂

Keep well all x

My journey so far with myeloma has been.

Broke my neck getting out of bed July 2009. Diagnosed MM Aug 2009.

Put on CDT (I did get some PN mainly in the feet ? spongy foot I called it)

Had real problems getting enough Stem Cells for a SCT but finally got 2 mill ?just ? in Oct 2010

Had my SCT in Nov 2010 ? Out just in time for Christmas…[Read more]

I am so pleased for you, I know you like my wife, will feel all the responsibility now but the Consultant?s anger should give you one very, very big clue to the course you should steer.

Be absolutely bloody minded about possible infections. Make sure everything is spotless use detol ? germ killer type cleaners etc? Do not allow anybody who…[Read more]

Hi there and welcome to this club….but not really wanting to be a member!

My partner Colin was diagnosed in October 2011, resulting in an sct in November 2012. Prior to the sct he was on induction treatment of revlimid, cyclophosmahide and dexamthazone. He had 7 cycles of that and then a couple of availed stem cell harvests, the getting just…[Read more]

Well done Dai, those neutrophils got a wriggle on then 🙂 result!!!!

Keep going 🙂

Vicki and Colin x

Hi jacqui and Geoff

Just wondering how you guys got on at Bristol! I so hope it went ok for you guys? Xx

Vicki and Colin x

Hi jean and frank,

Just thinking of you both and wondering how its going? Is frank home yet? And how are you doing jean x 🙂

Vicki and Colin x

Hi Eve, I would be staggered by that reply as well.

In Taunton we generally do not see the same Consultant consecutively i.e. twice in a row, unless the Consultant has specifically asked to see you. I consider it a terrible system, sometimes I feel I am on factory roller feed table. I am going along to the inevitable end and my card is…[Read more]

I am getting a little confused; you guys are way ahead of me when it comes to treatments. I have my next appointment with a Consultant on Friday 5th. At my last last consultation I was told all being well I would probably move on to Velcade with Dex.

I have been getting a fair amount of bone pain and am taking Tramadol and Paracetamol for…[Read more]

Eve and slim,

This is rubbish and there is no getting away from that! I hope that they can whack it into touch as soon as possible!!!! You are both strong and supportive of each other, and us on this damn site, so it's our turn to support you guys 🙂

Thinking of you and let's hope it's a blip!

Vicki and Colin x

Hi jean and frank,

So glad that frank got out for a bit…..but that's an epic journey for him as he had been whacked with everything you can think of to get through this sct! It will come good but it takes a lot of time. Even now Colin has been rubbish since having that gastroenteritis, came out of hospital Wednesday night and he has been…[Read more]

Hi jean and frank,

I so hope frank got home for a bit today! That will be a real boost to you all! I do believe how knackered you are jean….I am still not right! Colin has stopped the sickness etc but he is very very tired and lethargic…..it seems to be taking an age for him to get back to 'normal'.

These electrolytes that they are…[Read more]

Hi jacqui and jeff

Thinking of you both, hope you are getting on ok with the gcsf injections and very best of luck with the harvest x

Vicki and colin

Hi ner

Just wanted to send you and your mum some words of encouragement. Your mums pps are very low….which is a great preparation ready for sct. There is no hiding the fact that it is a tough road, but so worth it and she will then go from strength to strength!

Take care and enjoy your Easter

Vicki and Colin x

Hi Richard and family,

This diagnosis is a real blow isn't it (understatement ha ha). And harder with a young family, I have heard from friends of friends that Germany is a forerunner in the investigation and treatment of myeloma, so you may find it was a good move.

My partner Colin was diagnosed in October 2011 and had an sct in November…[Read more]

Hi jean and frank,

Just tuning in to see how you guys are doing. How did the assessment on franks kidneys go? Any sign of coming home yet? Would be great if he could be home for Easter. Nice for you and the family 🙂 could you record the united match for frank…..he will have plenty of time to watch it when he is recuperating?

Hope you are…[Read more]

Hi Dai nd Janet,

Nope not neurotic. Every time Colin says he feels off colour the first thing I do is reach for the thermometer! You just can't be too careful. I rather be safe than sorry. Like you say Dai….it's always out of hours when you feel I'll, that is something's remember very well with Colin 🙁

We had our own little foray into a…[Read more]