Silly little child?s game really 😀 I always say that when I lose, my wife says!

The object is to pinch and punch (lightly off course – unless you have just had a row – he he) your partner on the first of the month before she/he does it to you. It can be anytime after midnight on the last day of the month. You have to say at the time "Pinch…[Read more]

Well done ozzy that's great news. Keep in going and enjoy your short break!

Vicki and Colin x

Hi Ann and Pete

How you both doing. It's really difficult Ann, I remember it so well. The only way is up now! Colin seemed to do well on jelly for a while and then a bit of ice cream, but overall he was like Pete. Once it starts to clear though it goes quite quickly. Someone recommended Jaffa cakes and I took those in, they worked for a while…[Read more]

Hi all

Jean, good luck for this next week and keep us posted. When Colin had his sct they went out of their way to tell us that the consultant would be on at weekends! I can vouch for it, I saw him…..he didn't smile much but he seemed to know what he was doing ! Frank will soon be out again and watching Man U to his hearts content.

Take…[Read more]

Trish and Peter

Good luck with this next course of treatment, hope its a very smooth ride for you all!

Vicki and Colin x

Hi Phil

The randomisation was a bit weird, we had a chat with the trial team and they seemed to be gauging our thoughts before doing the randomisation. In the end we came to the conclusion that Colin didn't want to take it, who knows if that's the right decision or not, but only time will tell.

Good luck with yours though, by the way I get…[Read more]

Hi Jane

Sorry to hear your news 🙁 , my partner Colin was diagnosed in October 2011 after having what we thought was a bad back ha ha! He had an sct in November 2012, after having 7 cycles of rcd (revlimid, cyclophos and dex). We were really scared to begin with and wondered how the heck we got here! It's amazing how many people have to…[Read more]

Well spotted Tina. I jast loove an idit buton:-D

Kindest regards – vasbte

David

p.s. We have been married 50 years and I cannot remember ever not playing Pinch Punch. It has helped get us back together on many occasions!

That is great news Ozzy. One hell of a drop 48 to 10 😀 😀 . You seemed to have settled down well to Velcade – none of the dreaded PN ?

Kind regards – vasbyte

David

Oh jean and frank,

What! That's pretty bad isn't it! People are only human but it doesn't help with all the stress and you having to wait so long anyway! Best of luck for Monday! I am sure you will be keeping a close eye jean!

Vicki and Colin xx

Ps hope you enjoyed Barcelona Helen and you are feeling ok despite the scores being a little…[Read more]

Hi Pete and Ann

Sorry to hear of peters swallowing problems. I remember that so well when Colin was in. It was horrible as there is nothing that can be done, other than wait for it to get better. Remember pineapple juice is supposed to be good to help soreness and ease the blistering?

Hope you are ok too Ann x

Vicki and Colin x:-)

Hi Vicki, from another one, trish and Peter,

Sorry this is a definite relapse. What a blow, however everyone seems so positive about this velcade that its got to be a winner. I hope that the response is a speedy one and then you can enjoy many more happy nights of curry and wine 🙂

Onwards and upwards as Tom would say!

Vicki and Colin x

A lot of people get confused between a terminal illness and disability. You can have a terminal illness and not be disabled and of course vies versa.

To qualify for Attendance Allowance you need to be a Pensioner. i.e. over 65. Disability Living Allowance is for those of working age.

Put quite simply to qualify you MUST NEED someone to…[Read more]

Hi nicki

Sorry to hear you are having a tough time, and that word relapse, I hate it! I can understand how you can develop some emotional, mental health issues in dealing with this condition, as supporter or sufferer! It is so challenging and the fatigue of being a supporter and the worry of caring for the person you love can have some…[Read more]

Hi Ann and Pete,

We are ok…..Colin's hair needs cutting! Hey you guys we remember that sweetcorn smell. It's weird. It is a really tough time but well worth it, although asking coiln afterwards he said never again! Colin did struggle with food, partly due to mouth and mainly due to Rubbish hospital food,mat their own admittance. Good luck…[Read more]

Hi Guys and Gals, Thanks for the support and advice very welcome.

Yes, Eve, I very much intend to see my flowers bloom. I have just received the first batch of Plug Plants, 340 Red Geraniums ? I now have to pot them on which is always a tedious job. The garden will look the same as last year; I tried to persuade the better half to go for…[Read more]

How's it going Ann and Pete?

Vicki and colin

Hi Dai,

Sorry to hear of the waiting, we too have to wait and now expect it. We are gobsmacked if we are even within half and hour of appointment. That said Colin has elected for no maintenance treatment, due to wanting quality of life so our next appointment is in two months time!

You made me laugh about Janet's baking, that was hilarious…[Read more]

Jean

I hope the Hickman line went ok…. The hospital was really good. When Colin was in isolation they let me stay through from one visiting time to another. It was usually 3 to 430 and then again at 6 til 8. I just stayed there all the time, quiet in the corner, and they'd probably say asking lots of questions, :-). I gave the nurses some…[Read more]