Keith

Sorry that latest set of treatments hasn't worked. What a b! Still as the other have said there's the old treatment. To have a go at it! You try and keep your chin up, this mm can be persistent cant it, but you keep going because where there is treatment that means a big hammer to knock this mm on the head 🙂

Vicki and Colin x

Come on Lesley you can do it 🙂

Vicki and Colin 🙂

Hi Paul,

Sorry to welcome you to this site, but I can tell you it has been a godsend. My partner Colin was diagnosed in October 2011 and it was a bold out of the blue. Like you Colin, and me as his partner were scared stiff, of the medication, the process, the transplant and the outcome overall. Overtime we sort of got used to our life changing…[Read more]

Megan and Phil

That's great for you both…..take toms advice, slowly slowly and keep an eye on temperatures…..I'm still doing it and getting on Colin's nerves :-). It's right about over doing it as Colin knows when he's done too much, but don't let Phil get there if you can help it!

It does feel great to have them home doesn't it! You…[Read more]

Well done val, keep going onwards and upwards as Tom would say!

Vicki and Colin x

Hi Charlie,

Agree with all the other posts, why not try asking for a physiotherapist consultant to give advice as well re general exercise. Colin has been recommended something like tai chi or qui gong I think it's called. Walking bound to be good, little and often (like food ha ha!). Definitely avoid the swimming pools and saunas, too many…[Read more]

Hi Lesley,

Welcome :-(. My partner Colin was diagnosed in October 2011 and although Colin never said he was scared, I can tell you we both were. Having done Internet searches, wrong thing to do and didn't know about this site then, we were scared, frightened and it felt like our world had collapsed. New terminology, new life, new worries,…[Read more]

Keith

You sound like you are having a tough time……keep your chin up, you can do it. This mm thing must be beaten and you are jst the man for the job. Easy for me to say when you are feeling so rubbish 🙂

All the best

Vicki and Colin x

Megan and Phil

0.5 hooray hooray hooray.

It's a b when you think they can come home and then don't isn't it!. That said better to take your time, and not have the false start we had. Temperature spike when he got home on day one and straight back it!

So hope tomorrow is the day……take it easy and both enjoy 🙂

Good luck

Vicki…[Read more]

Hi Lisa,

Sorry to hear your hubby had a rough ride through his treatment…..Colin had lots of infections too, we were at the hospital nearly every month and on most occasions he stayed in for ranging between 3 days and a week. We were on first name terms with the staff and the volunteers!

I wondered why they weren't going to do an sct for…[Read more]

Peter

Just wanted to wish you good luck with your forthcoming sct…..keep us posted! Colin had a couple of blips, as you know but touchwood his bloods have come right back up and is doing well.

All the best

Vicki and Colin x

Sarah Jane,

Agree with the others and I've learnt something too. Had no idea about the diary. Good luck with your continued treatment

Vicki and Colin x

Hi Daniel,

Like you when my partner Colin was diagnosed in October 2011 I thought the world had come to an end, still do sometimes. And reading lots on the Internet can be depressing and misleading. I was worried about how long and what ifs. Try not to and always have someone you can talk to about your dad and you and your worries.

It is…[Read more]

Wendy

I so hope it's a blip. You have done so well, so far! Sorry I can't help with the advice re relapse but just letting you know we are thinking of you…..keep going with that triathlon!

Vicki and Colin x

Hi Peggy

Not sure who Smeegle is but who cares if you are on the way home! 🙂

Sorry you've had a rough ride of it….Colin still has some flash backs and even hates going to the hospital for his blood tests at the moment! Stil you take it steady and slow, all being well you will be up and about in no time!

Vicki and Colin x

Hi deb

Sorry to hear of your diagnosis. My partner Colin was diagnosed in October 2011 and it was an absolute shock for both of us in different ways! Like other coiln went on the myeloma 11 trial and after about 7 or 8 cycles he went for a stem cell harvest for transplant….a couple of blips along the way but had the transplant in oct,nov…[Read more]

Hi Megan

Your ears must have been burning today…..we were talking about you and Phil and the ups and downs of sct! The neutrophils are at least on the way up…..and fresh air, wow. Colin felt really weird when he came out of hospital so it's good that Phil has got a little taste of the fresh air early!

The food, gosh Colin remembers that…[Read more]

Hi there,

Just caught up with this post. We do hope all goes well for you and there are lots of positive stories on here…..that guy with the long remiss ions, wow 🙂

If you are able to go through with the second sct that will be great as it buys the time for the researchers to provide more far reaching treatments. They are building on the…[Read more]

Hi heather,

Welcome. My partner Colin was diagnosed in October 2011, it was like a miserable bolt out of the blue! And like you we were shocked to the core. However he has had several months of revlimid, cyclophosmahide and dexamethasone resulting in a stem cell transplant this last October 2012. He has been out of hospital nearly 6 weeks and…[Read more]

I have just caught up with this post and I like Mavis take my hat off to people who go on the trials. There would be no progression if we all opted out and as such these "trialers" have giving unnumbered people a longer and probably happier life. I am too old for any trials but would have taken that course if it had been offered.

With regard…[Read more]