Chris

Just wanted to day the very best of luck to you, and hope that your recovery carries on in leaps and bounds. Those neutrophils up to 0.95 that's amazing. It must be that beer you've been drinking!

Do start and new thread so that Colin and I can keep up with your progress!. Colins neutrophils have come back up to 0.7 which was after a…[Read more]

Hi ann,

Re the line and chemo. The line was fitted in a theatre at hospital so I wasn't allowed there but I was allowed to wait with Colin beforehand a bit and obviously the usual after. Colin was a bit sore and a bit worried about getting used to these dangly bits protruding from his upper chest/arm. But actually he did get used to it and it…[Read more]

Thank you for thinking of us.

Thursday night we had an excellent dinner with 6 of our very close friends, friends that have stood the test of time and been through the ups and downs of life with us.

We are now in a 5 star log cabin, log fires and hot tubs in Porthtowan, just east of St Agnes in Cornwall with our son and daughter and their…[Read more]

Hi all,

Chris, you are sounding quote chipper so hope things are on the up for you. I was amazed that you did a bit of driving! Well done, be careful not to over do 🙂

Well with regard to colin, next saga. They are now saying they think the pain he is getting in muscles is a condition called polymyalgia. Apparently his inflammation marker…[Read more]

Hi all,

Andy, good luck with your visit to the professor. Really hope you get some good news as you are due some! Tom, thanks for the cyber hugs! That's helped :-). Colin does still have the line in and they did mention that possibility. You are right about the hard work, it's an hour each way to the hospital and with the really heavy rain…[Read more]

Eve there are limits to everything and giving up my Guinness will never be on the agenda 😀 😀 Have a great great trip

Kindesdt regards – Vasbyte

David

You know Debs I am sure Myeloma UK will have been really pleased with your comment "Eve's post made me laugh about the Under 50's site [u]It was set up in the early days before this forum was changed[/u]".

Kindest regards – vasbyte (aged 69 10 months and 22 days)

David

Just thought I would say welcome Karen and the very best of luck with your treatment. As you have found no doubt there are some real nice helpful folk on this site.

Kindest regards – vasbyte

David

Thanks Jean for the heads up.

I am a putrid shade of green with envy. New Zealand is high on our list of places we would like to go but sadly we are not now going to make it unless we win a great deal of money on the lottery 🙁 .

Have a great time the both of you 😎

Kindest regards ? vasbyte

David

Hi chris

Just wondering how you're doing now you're at home? Colin still not back home yet? Have you had anymore pain in your arms? Colins is still there?

Vicki

Hi all,

Andy, thanks for your support…..how are you doing? Hope they are giving your pps a battering.

Tom, you're right I reckon it is the nurses as they are pandering to his every whim!.

Temperature seems to be more normal, not sure of the cause yet, still waiting for some other bloods. He is pretty fed up, and the pain in his upper…[Read more]

Well all, what a day it's been. Highs and lows!

Got a phone call this morning from Colin……guess what when can you pick me up Vicki, I can come home hooray hooray holiday :-). after all the checkouts from hospital we left for home and got home bout 345pm, with a romantic Colin being a little sick on the way….no problem can deal with that…[Read more]

Keep going buddy just keep bl88dy well going. I wish you all the luck in the world

Kindest regards – vasbyte

David

Hi all,

Sorry not posted for couple of days, but needed to get my head together to make sure that this pain thing is ok and it really is gcsf related. Well seems like I believe it now. Neutrophils, the real,score is 0.41(he's not had the gcsf for a week so they dropped down. No problem there, and apparently platelets and the like are doing…[Read more]

Chris,

Wonderful news, so glad you've got home, even enjoying a roast and a beer. That's great going :-). It must be great to enjoy just being at home. After all this the simple things seems so important don't they. I can't wait for Colin to be home…..hopefully sometime this week.

The neutrophil score is now the real score, not boosted by…[Read more]

Ali,

That's absolutely wonderful news, good on you all, especially mum for doing all the hard work! So pleased to hear things are slowly and surely improving. Including the hair…..is a new style in order? Very best wishes to you all. This will be a good Christmas for you all…..best present ever, mum on the mend 🙂

Vicki

Ps Colin…[Read more]

Welcome Stewart, You will find all you seek and more on this site, some real nice people and good sound advice. The one thing to bear in mind is that Myeloma is a very individual decease so whilst we are all going down the same road it is a very broad road.

Kindest regards ? vasbyte

David

Hi chris,

Just tuning in, I really hope you are on your way home, if not already there! It will be so great for you, and hope that you can really enjoy the time catching up with home and being I familiar surroundings!

Colins bloods are good and he is seemingly a little better with the pain, although drugged up.

Good luck and keep up…[Read more]

Hi Helen and Tom,

Thanks for the reassurance. I think I had a minor wobble yesterday, and had a blubb outside as i was convinced mm had reared it's head. I think being shattered and trying to keep everything going took a chunk out of me!. The good update for me is that I feel a lot more reassured from you guys and apparently the consultant is…[Read more]

Hi Ange, I would have liked to have gone to that one, I always planned to go to one in the South West but have never made any of them yet. 24th is my wedding anniversary so do not think the wife would wear that 😀 So enjoy the day and if they unveil a cure please let us all know;-)

Kindest regards – vasbyte

David