Hi Nettie, we seem to have the same ?brand? of Myeloma. Unfortunately my GP did not pick up the symptoms just kept giving me more ?creams and potions?.

Following my SCT my PP dropped to 2.4 never zero. That was Dec/Jan 2010. I was told at the time the SCT would only probably last for 18 months so I am past my Sale by Date so to speak!…[Read more]

Can I just add my best wishes to everybody else?s posts, Colin I am sure he will fly through it.

A word of caution when he comes out [u]it is not over[/u], you must be fastidious about avoiding any infection for at least 12 weeks. Go over the top on it ? better safe than sorry!

Kindest regards ? vasbyte

David

Hi Gill

Just wanted to add some support here. My partner Colin was diagnosed in October 2011 with one fracture to the T12 vertebrae,and off the richter scale light chains!, and a lower number paraprotein score. We were absolutely dumb struck as he had always been fit and healthy- even that year he had been ski-ing, golfing and we had two weeks…[Read more]

Hi Polly

Just a little comment about the arm you have been randonmised on. All the drugs are good so dont worry. I remember asking my Doctor as I was worried that Colin would not tolerate 'this super drug' Revlimid and he explained how all the drugs are good and operate at a sufficient level to treat well…its just when they do trials they…[Read more]

Hi All,

well here goes, no going back now :-). Colin had his Melphelan this afternoon so that will start to knock his old unwanted bone marrow out now!. He is in good spirits but wondered just how many of those ice pops he had to suck on. He started two hours before!.

Yesterday was just a check over day, bloods etc. They wanted to insert a…[Read more]

Hi Chris and Lena,

Just wanted to say Hi and hope that the SCT is going well. Hope those little cells are now starting to do their magic as your old, no longer required marrow disappears 🙂

Hope the runny tummy etc is not too bad. Post if you can. Colin is now underway so he's not too far behind 🙂

Vicki

A warm Welcome Gill.

The others have giving good advice, especially about not surfing the net for answers. This site and MacMillan have all the UP-TO-DATE information you will ever need.

I was diagnosed in Jul 2009 at the ripe old age of 69. I have had my Stem Cell Transfer and I am fit and well but I still suffer from cold feet, not just…[Read more]

Decided not to bother with the PP check and instead wait for my appointment on the 21st December. By the time give the blood and then wait for the results another 7 to 10 days and then try to sort it out with the hospital it is not worth it.

The infection is clearing up nicely – Timovate cream works well.

I have no noticeable bone pain…[Read more]

Hi all

Thank you so much, and in particular like your description of the runny tummy Dai, made me laugh! By the way have you married your daughter off now? If so hope you enjoyed it!

Starting a new thread now. Needless to say minor hiccup this morning, rang up, no beds ahhhhhh! Almost nervous breakdown time for me. Had to wait an…[Read more]

Hi Peggy,

Colin my partner had gcsf injections to help his cells mobilise. It was only when that failed he had cyclophosmahide priming and gcsf together. I get the impression that gcsf is always involved, irrespective!

Good luck with your harvest x

Vicki and Colin x

Hey chris,

Im glad things are going ok, and you're feeling reasonable. Get that fluid in, I'm with Lena……Colin will tell you I nag him about drinking plenty (no not alcohol) :-), so will be on the same track as Lena!. Colin will be reading the posts too and will have the iPad in hospital to keep him in touch with the outside world!

Hey…[Read more]

Hi all,

Thanks very much for the kind words and advice. Getting all the gadgets ready and of course the list as per yours Helen. Hadn't thought of the lip salve so will get that! We're very much the waiting game now. We have to ring up at 0830 in the morning to make sure there is a bed…..that would be all we'd need!

Will keep you all…[Read more]

Hi Polly,

Sorry you've had to start treatment, but best to keep that mm under control. I'm like Eve, great at the theory but a complete whimp when it comes to taking any tablets!

Colin had to inject every day when he was on induction treatment. He was injecting something called fragmen. It worked for him, no clots :-). He disliked doing it…[Read more]

Hi chris,

Hope things are going ok….keep yourself occupied and counting the days till out.

No need to brag Tom, 3 years ahead indeed 🙂

We're getting a bit nervous now. Bits and pieces being charged up and gathered to keep Colin occupied whilst in hospital. I'll start a new thread for Colins SCT update as the other one is turning into…[Read more]

Hi mary and Charlie,

Sorry for the late reply…..missed the post. We hope Charlie is doing ok and you are keeping your head above water Mary :-).

Colin had many infections! And we were told when his temp went 37.5 and above we had to phone the hospital and invariably they said come in. Occasionally they let him come home with oral…[Read more]

Hi Tina,

Just wondering how you are and how it's going?

Vicki and Colin x

Hi chris,

Just joining in to see how you are doing :-). Hope you received your little cells safely back today and you aren't feeling too bad x.

Fingers crossed forma very speedy recovery……Colin building up for his go monday 🙂

Can't believe John ross is old enough to be in prison, I'm sure Dallas want like that when i was…[Read more]

Hey Kerry,

You are just being honest, no worries with that. Colin Has mm and I have felt so helpless and frustrated, are the doctors doing all they can, this question, that question, food what sort, drink fluids, enough, not enough?, why us, why him, life's unfair etc…..and there is only the two of us at home. You have all the rest to worry…[Read more]