Thanks very much Joanne

Then date for harvest is getting closer….injections start Saturday. :-). We are holding our breath and everything crossed. That's quite hard to do LOL 🙂

Vicki and Colin x

Eve,

That's wonderful news and really encouraging for us who are on your coat tails! Best of all though it's great for you gys after all you've been through.

🙂

Enjoy whatever you have planned next

Vicki and Colin x

Hi Mary

Sorry to hear about stans collapse. That must have been very frightening for both of you! It seems a long time not to have more information…..push them for some !, Colin always tells me I'm too pushy, but knowledge and an understanding of what's going on, for both your sakes is really important.

You take care of yourself too. I…[Read more]

Hi Nicola,

Just catching up with your posts. My parter Colin was diagnosed in October 2011. During his initial treatment, 7 cycles of cyclophosphamide, dex and revlimid, he got very very tired and could fall asleep at the drop of a hat. He had short bursts of energy and then al of a sudden would just disappear and he'd have to have a rest. On…[Read more]

Hi all,

Tom, firstly your kind words make us feel humble….it's lovely to know there is such support x. We will have that shoulder charge in our minds eye at every turn! :-).

We have had a lovely day today….Colin has had really good energy, and has said he feels hungry which is great to hear.
He's looking pretty cool at the moment,…[Read more]

Hi ann and Jean,

Ann, re peters numb extremities and the swollen ankles. Can't help on the swollen ankles but i am sure I have read about a lot of people mentioning slight numbness……is that the peripheral neuropathy thing?, if so I think there is a leaflet on the site here somewhere. I think it is quite common but I did not hear Colin…[Read more]

Hi Pia,

Welcome to the forum! You will find so much information, care and support from friends on this site. No question too small. Best wishes to your mother in law, and success from the treatment. It's a hard, individual road but one worth taking xx

Vicki and Colin x

Hi Mari,

Just sending some best wishes and here's hoping you and Stephen are ok…..:-) love and hugs from this end!

Vicki and Colin x

Hi Andy and steph,

Hope the hols are going well, from the southern softies, with the central heating on :-), still not as warm as kefalonia!

Vicki and colin x

Hi and welcome to the forum,

You will find lots of information, friendly support and banter on here. It really does help. No question too small to be responded to,

Take care 🙂

Vicki and Colin x

Hi Ali and Tom 🙂

We are still here, and good to know you are thinking of us!. All well with the SCT nurse yesterday. Again very helpful and informative. Getting our heads around it again…..we almost know those consent forms off by heart! I am still not going to put those dates down, as I don't want to tempt fate, but god willing when those…[Read more]

Sorry Tina, just joking about the shorts and sandals etc… Although I will be using the Shirt my Daughter bought for me.

My wife and I talk generally about the funeral arrangements but she does not like to get into the nitty gritty which my Son/Daughter will handle.

However building my own coffin has opened up everybody?s minds to what is…[Read more]

Emma

Just wanted to say hi and that you are a real star in dealing with this from such a very young age. Wishing you all the luck in the world with your treatment. Will have a look at your blog. My partner Colin was diagnosed age 55 is on myeloma 11 trial and waiting for an SCT.

Keep your chin up 🙂

Vicki and Colin x

Hi Mari,

Just been catching up on Stevens progress! It does seem like he is going through the mill, and it's amazing how the memory dulls the angst that was probably there the first time round! We really hope that Stephen will soon be on the up, and those neutrophils shoot right back up. It must be so hard to watch someone you love feeling so…[Read more]

Hi all,

We've just been catching up with all the posts. Ali, first of all it's no problem to hear your updates……nothing is ever a moan. It's so good to know that there is life after SCT! With this weather anywhere would be great wouldn't it!

Andy, it's so great to hear that you and steph have got away…abroad as well. Very brave but so…[Read more]

My instructions to my wife Tina are:

I will be dressed in a very colourful silk shirt that my daughter bought me some years ago. I feel really comfortable in it.

I am vertically challenged, ok I am a short guy 5ft 7 1/2 inches, well now I am considered short but in my youth I was average height which was 5?7?, but there you go. I like…[Read more]

Hi Tom & Min, It is in bits in my workshop at the moment Tom but I am going to start final assembly soon. I am not in any rush because I feel great at the moment, I have my 3 month Myeloma appointment this Friday. My Son and Daughter are finalising the pictures we are going to put on the coffin, we have selected 6 at the moment and need two…[Read more]

Just what you need Andy, I had a great week in Menorca. Whereabouts are you in Greece?

Kindest regards – Vasbyte

David