Hi dee,

Hey glad to hear the treatment has started and I am sure soon the mountain which looked like everest will soon look a bit more like Ben Nevis! The averages you talk about are the same as we were told. I asked about those as it didn't seem long. It was explained that some people live 20 years or more with this condition and others sadly…[Read more]

Tom,

Thanks so much:-) , positive as ever. Thanks for the positive, honest thoughts. Glad to hear things are going so well,enjoy your weekend, even if the weathers rubbish. Good excuse for some good hearty food and a couple of glasses of the red stuff……or vodka for you I seem to recall from your previous posts.?

Thanks for the good…[Read more]

Hi ann,

Hope Peter is feeling a bit better and some food is starting to taste good. Colins latest is best of british, roasts, cauliflower cheese etc, and moved away from cake and a little less on the milk shakes!

See my post on treatment, the next stage is starting we think. Stem cell harvest next. No more treatment on cycles for 4-6 weeks.…[Read more]

Hello only me,

I am so sorry to hear your news. I can only imagine what you and your family are going through. My mum is my best friend, confidante and stabilising influence. My heart goes out to you and your family. I know these are only words and will do little to help but I hope they will help in some small way. I hope the medical teams can…[Read more]

Hi Stephen,

Wishing you all the very best with your SCT. We too live in the west country (Gloucestershire) and will be visiting south mead soon too, your summaries have been extremely useful. I hope it all goes well for you. If you are well enough to give any further updates that would be great. We have been told today that Colin is going forth…[Read more]

Hi dee,

I'm really sorry to hear that your dad is going through it at the moment. You don't say how old you are but I can assure you it doesn't matter, young or old, when you see someone you love in pain or Ill it is a real worry and we are all the same. It is frightening especially when you don't know anything about the condition. We didn't…[Read more]

Hi both,

Not sure about the tummy issue but I see Ali's mum had something similar so it must be ok. Re the constipation thing, I get the impression from our consultant meetings that they are always interested in whether they are going too much or not enough! We've tested a couple of different types of laxatives but I reckon the one in an orange…[Read more]

Hi Rachael,

Glad your mum has made some progress and she is feeling a little brighter. Whilst dealing with this condition as a family member doesn't get much easier, for me anyway, it always helps when you can see the patient getting a bit brighter! Don't worry about having 'moments', I have them a lot and go from being really positive to mrs…[Read more]

Hello siobhan

I have read some of your mums posts and although never corresponded with her I can see from all of our friends on this site that she was held in very high regard. I cannot begin to imagine what you are going through, coping with helping someone through is hard but suffering this loss I cannot and do not want to imagine. Your mum…[Read more]

Hi Alison

Just a quick note. Firstly wondering how your mum is doing and has she started SCT or any tests yet?

Also on a lighter note I assume you are an auntie again by now ………:-)

Vicki

Hi Rachael,

Welcome to the forum:-) My partner Colin was diagnosed at 55(up to now realised I have aged him a year! Lol). it was a real bolt out of the blue. He has had 7 cycles of treatment crd (cyclophosmahide, revlimid and dexamethasone) and thankfully up to now all worked well. He had one bone lesion in his back which was treated with…[Read more]

Hallo Ian, I had a very similar operation in 2009. I have full movement of my neck and most people do not realise my head is held up by titanium 😀 rods. I broke my neck getting out of beds! All the very best of luck with your treatment.

Kindest regards – Vasbyte

David

That news makes me so sad. She was always a great support to everybody on here.

David

Roy,Anne and family,

This is an inspirational story and your wife has clearly battled and is winning. Good on her!

I know what you mean about this mm thing being unknown! My partner Colin was diagnosed in 2011 October and it hit us like a steam train. We are battling on too and hopefully nearing an SCT shortly. One or two cycles more we…[Read more]

Hi Stephen, I really happy that you found my Musings from ward 9 helpfull. I am "still standing" and feel well.

The very best of luck to you

Kindest regards – Vaasbyte

David
(aka Perkymite – (which is my gaming name in World of Tanks and Age of Empires Online,games I consider brain exercises 😀 )

Hi ann,

First things first you are right about the weather it is tipping down here and I think it's forecast for tomorrow as well! Turkey must seem a very long way away at the moment!

I can understand you might be worried about going to Spain but read the posts from perkeymite David either on your string or mine. He gave some really useful…[Read more]

Hi ann and Peter,

How is it going for you guys, not seen any posts so a bit concerned?

A bit of good news for once. Colin and I went to see the consultant today. They have delayed his treatment one more week, neutrophils still low at 0.54. They are considering options to reduce his revlimid dose next month so we shall see, another…[Read more]

Hi Jean,

I don't understand what your consultant means about the protein, I thought that it was good that the paraprotein levels come down. In our case colins pp level has come down consistently each month, and our consultant seems very pleased with that. I thought the pp level is the cancer marker measure so I would have thought that it was…[Read more]

Hi Sue, My first SCH failed, 2009)and I had to go around again. I then got enough for one transplant which I had in 2010. Sorry I cannot remember the name of the drug they used to promote etem cell growth. Keep strong.

Kindest regards – vasbyte

David