Hi Jeffery,

I was on ZoMorth for some time when I had a great deal of bone pain some time back. Zomorth is very addictive I found, and when I cam off it I went through “Cold Turkey” withdrawal. I had all you had plus I felt like death warmed up. I would lay in bed sweating madly but feel very very cold. I had ants under my skin crawling…[Read more]

Some good news the Skin Cancer is only a mild form and they have taken some samples (ouch) and I now await a date to have them removed.

Kindest regards – vasbyte

David

Hi Anthony, I only did 3 months on Velcade by which time I was getting bad PN. I was taken of Velcade and put on Revlimid. I have never been in remission since I started down the MM path, after SCT I got down to 2.9 pp However after 3 months on Revlimid I hit “excellent Remission”, my consultants words not mine, with uncountable PPs i.e.…[Read more]

Hi John, It is very bewildering when you first start down the MM path. I started on the path of 5 years ago so do not give up. Carol has given some good advice and information. I was 66 when first diagnosed and had a transplant at 67. I have always kept my self fit and active and this counted a great deal in the decision to let me have a…[Read more]

I am on my 10th cycle of Revlimid and have been taken off treatment for a month whilst I underwent a Prostate operation and had a couple of teeth out. I expect to go back on treatment at the end of Aug. In the grand scheme of things, I was informed, this should not make a lot of difference. I go in Friday to see my Consultant and it will be…[Read more]

Op was not a success I am afraid. However not a complete failure yet. They had to put the Catheter back in and in 3 weeks they will take it out again and I will “try to live without it” if I cannot it means a permanent Catheter for me!!!

kind regards – Vasbyte

David

Thanks all for the kind posts. Yes, they are thinking of cutting out some more of my head. My appointment is later this month when they will decide what to do.

From January it has been a really troublesome year. July/August has been a real problem month of one thing after another. Biopsy on my head, Two teeth extracted, Operation to core out…[Read more]

Not to well Andy I now have skin Cancer to add to my list of cancers! I have an appointment with them at the end of the month when they are gong to cut a slice out of my head!!!! Not going to be much left of me at this rate.

MY teeth extraction, on the 27th, proved a real tough one they could not get the top one out and had to cut it in 4 and…[Read more]

Yep signed.

David

I did well on Rev and Dex going to “excellent” Remission withing a couple of months. I have been off it for nearly a month now whilst I await my Prostate Operation, which is today. I expect to go back on it at the end of the month, I think I see the consultant on the 22nd. The only problem I have with it is the cycle of Constipation and loose…[Read more]

Best of Luck Karen I hope all is well.

Kind regards Vasbyte

David

I would not say they are “ignored”. however most of us have our own problems to solve and our own fund raising.

Well done for your work keep it up.

Kind regards – ~Vasbyte

David

Glad you are still going well Tom. I had bad PN with Velcade. They just took me off it and I went straight onto Revlimide which I have found much better with minimum side affects. Plus it took me in to remission which I had not managed to achieve since I started in 2009.

Kindest regards – vasbyte

David

You are absolutely right Eve.

Anyway, I have already met God, he was the RSM of the 1st Parachute Regiment, and he told me several times, when I was a young Sergeant, exactly what he was going to do with several bits of my body when he had finished with me. Said at 500 decibels 2 inches from my right ear, whilst I stood frozen to the spot So I…[Read more]

You may be right there Richard: I repent, I repent. I repent!

We do not mention those days Don, although over 59 years ago my wife of 52 years reads this forum!!!! (p.s. yes they were great days shhh).

I repent, I repent. I repent

I have not heard that said Maureen. The Cancer is on my head and the first thing they asked was whether I was…[Read more]

Hi Bryn, At 37 you must have been shattered to hear the bad news. I am 71 and I was 66 when diagnosed, then 5 years ago this was considered an old mans decease, but I see more and more youngsters. I am not really up on the latest treatments now, having settled into a routine with the treatment I get and am happy with.

However the difference…[Read more]

I seem to move between Constipation and very loose bowls that can explode at any moment. I won’t recount some of the problems I have had. I am off Chemo at the moment and my bowels have quickly gone back to normal.

When on Chemo I note bowl movements on my calendar and as soon as I see a gap I start taking Laxatives to help. Not a lot just…[Read more]