Hi Teresa,

Cotswolds are picture box lovely. The forest of Dean is more rustic as it was mining community (now long gone). She'll love it. Beautiful here at the moment. The good weather can lift the spirits.

I agree if they could just find that drugs to control this condition, like diabetes that would be great.Col is on day 15 of his cycle…[Read more]

Ann, write down your questions now. When you get there they will all be forgotten!

Dex affects people differently, myself I could not sleep the night I took it; I would stay up all night watching videos(I use earphones ? so as not to wake the wife), answering or putting questions on this website and/or playing on my computer. I also felt…[Read more]

That is the spirit Keith have a great holiday and to hell with MM.

Kindest regards – Vasbyte

David.

Hi Peggy, I have something similar, I am not sure when it started, although not as bad as you. My left leg tends to go out to the left slightly and my right does not come all the way forward when walking. This only happens on odd occasions but it does make me very unsteady some times. I had thought of using a walking stick but at the moment I…[Read more]

Hi David

Funny you should mention the high incidence. I thought. That when I saw several on here, including us from the west country!By the way, took your advice and got out and about in the forest of Dean and Cotswolds. Again not too far from us. We enjoyed it. Getting braver and who knows might gather farther afield…..

Best of wishes and…[Read more]

Hi ann and Peter

Just wondering how it's going. Colin is on day 11 of cycle 7,second lot of dexamethasone. So far so good…..

Ann I read your last post. I was chuffed that you said I was positive. That's what I try to be, but how hard is that sometimes!!!.still my thoughts and prayers are the same each night. Cure for all and Colin to beat…[Read more]

Good Going Dia, just keep up the good work.

I had a similar situation many moons ago now with my blood test results. So I altered when I had my blood taken from a couple of days, that I was told to do, to 5 clear working days before. Now I know all my results will be available and I always ask, good news or bad it does not matter ? they are…[Read more]

Have a real good time, you deserve it.

Kindest regards – Vasbyte

David

Actually Ann I was told by my doctor that Somerset is a hot spot for Myeloma. He has two other patients, which is unusual!

KIndest reagards – Vasbyte

David

Hi pilgrim,

My partner Colin was diagnosed last october 2011 with mm. It's a real shame you've had no support from your Gp, colins has been brilliant from the start, however once the consultant is in place they are reluctant to offer advice but will listen and be supporting, or should be!

I'm always hesitant to say what is significant or not…[Read more]

Hi Antoinette,
🙁
I believe the standard phrase is welcome to the forum!. My partner Collin who is 55 was diagnosed last October and it was a real bolt out of the blue. I'm sorry that you have been diagnosed with mm. Scared I can understand!!!!. I'm scared for Colin and spend each day worrying. However on a more positive note. When we…[Read more]

Hi ann and Peter,

Sorry to hear Peter is feeling so rough and you ann in a different way. This forum has helped me loads too (and Colin) as I share all the tit bits and information spotted! That said the mm is still there. I do sympathise with you Ann because there are times when that helpless lonely feeling can wash over you-usually when…[Read more]

The Geraniums I have planted in the garden look good, nice colour. The ones I have left outside my greenhouse, were smaller plants and a couple are looking a bit distressed (leaves go red), so I think I was rather early. I normally wait for the council to plant their borders and then do mine in the same week But for some wierd reason I decided…[Read more]

Hi Nicki, Nice to hear all is well. Green Tea another one to add to the list with Cucumbers, Red wine etc etc… must check it out 😀

Kindest regards – Vasbyte

David

Just checked it out the link is

http://www.health.harvard.edu/press_releases/benefit_of_drinking_green_tea

Three cups a day – but not it does not actually mention Myeloma!

Hi Gilly nice to hear from you again, glad you are keeping well.

Kindest reagards – Vasbyte

David

Well done Tina that it the way to do it down down down with PPs.

Kindest regards – Vasbyte

David

Best of luck Keith I hope all goes well for you.

Kindest Regards – Vasbyte

David

Hi dai

My partner Colin was diagnosed in October 2011 and is on cycle 7 of cyclophosphamide dexamethasone and revlimid. His pps have come down from 17 to 1.2 so far and light chains down from 31000 to 1300!. Like everyone Colin gets some good and bad days with dexamethasone. Some random nightmares, some interrupted sleep and more emotional…[Read more]

Hi Roz, You were here when I started on the site I think and it is nice that you have kept in contact. I wish you all the best for the furture.

The nearest I have to your loss was that of my son at the age of 19 years. It took me 18 months before I could say his name withour welling up with tears so I know, I think, where you are coming…[Read more]