Perkymite replied to the topic New comer to site in the forum Newcomers 13 years, 9 months ago
Hi Allen, welcome to the site (?).
You are better off starting a new posting rather than join half way down on an existing one.
It took me 4 attempts to get my Stem Cells, first three I only got One mill and then I had to wait nearly 3 months for another go. The second attempt they flew out.:-D
Kindest regards – vasbyte
David
Perkymite replied to the topic Treatment Free 🙂 in the forum Treatment 13 years, 9 months ago
Can I join everybody else Tom and say congratulations.
I was really surprised that you are off the Zometa infusions as well, I thought they were given to protect the bones from loss of Calcium. I take the tablet version, Loron, and understand I will be on them for the forseable future:-S . So this must be a major event 😎
Keep going…[Read more]
Perkymite replied to the topic New comer to site in the forum Newcomers 13 years, 9 months ago
Hi Dave, Welcome to the site (?).
Several on here have had two SCTs, but generally they have been a lot younger than us, I am 69, if my memory serves me right – and I cannot be too sure of that nowadays :-/ .
I was told right from the start that I could only have one SCT because I was 68 and 70 was the cut of limit not matter how fit you…[Read more]
Perkymite replied to the topic Just to frighten you all!! in the forum General 13 years, 9 months ago
It is always nice to actually SEE someone you converse with. Hallo Mavis, nice to meet you 😉
Kindest regards – Vasbyte
David
Perkymite replied to the topic HERE WE GO AGAIN !! in the forum Treatment 13 years, 9 months ago
I am sorry to hear that news Bridget. I wish the very best of luck and will be keeping my fingers crossed for you.
Kindeste regards – Vasbyte
David
Perkymite replied to the topic week of firsts in the forum End of Life and Grief 13 years, 9 months ago
Dear Min, I will miss your sound sensible posts but I wish you all the very best for the future.
It is great you are moving on, my wonderful Mo will have to face the same journey sometime in the future and face that same loneliness that you can only fully understand when you have lived with someone you love for a long time.
All the very…[Read more]
Perkymite started the topic coughs and colds. in the forum General 13 years, 9 months ago
Hi gang, I have caught a nasty cough and cold that is doing the rounds at the moment which I am treating with 4 hourly paracetamol, temperature at the moment 37.7. Any practical advice would be appreciated.
KIndest reagrds – vasbyte
David
Perkymite replied to the topic stem cell transplant in the forum Treatment 13 years, 9 months ago
Best of luck for the Transplant on the 6th I am sure everything will work out fine.
Kindest regards – vasbyte
David
Perkymite replied to the topic Starting stem cell harvest next Monday. in the forum General 13 years, 9 months ago
[b]OPPPS SORRY[/b] Had a senior moment when replying to your post. You were asking about a Stem Cell [u]Harvest[/u] and NOT a [u]Transplant[/u]. Sorry.:-/
Sue, who clearly read the question, has given the correct answer 😀
KIndest regards – vasbyte
David
Perkymite replied to the topic Starting stem cell harvest next Monday. in the forum General 13 years, 9 months ago
Hi Terry, Best of luck with your SCT.
The best thing I ever did was take in my Laptop and Mobile. Most of the time you are just waiting for things to happen and my Laptop was a God send. Plus the wife and I text each other, which meant she could check on what was happening at any time, but most of all we could say good night and good morning…[Read more]
Perkymite replied to the topic What is stem cell transplant really like? in the forum Under 50s 13 years, 9 months ago
You sound good to go Penny – Vasbyte.
Kindest regards
David
Perkymite replied to the topic What is stem cell transplant really like? in the forum Under 50s 13 years, 9 months ago
Hi Penny, Firstly Welcome(?) to our site. As you say bags of information on here and the good news is it is all up to date.
You will hear this many times I am afraid but Myeloma is a very individual decease and it attacks everybody slightly differently and of course your health, fitness etc.. all come into the equation of what happens. None of…[Read more]
Perkymite replied to the topic HERE WE GO AGAIN !! in the forum Treatment 13 years, 9 months ago
That is tough news Bridget. Keep going young lady you WILL beat it.
Kindest regards – Vasbyte
David
Perkymite replied to the topic Dia – you OK in the forum General 13 years, 9 months ago
As usual Bridget has taken the words right out of my mouth, I am sure she is right.
I get all sorts of aches and pains left side of chest then it is the right then it moves to my neck ? opps sorry that is the wife ? but you know what I mean. I put them all down to the way I sleep or doing too much and like Tom says a simple stretch out to…[Read more]
Perkymite replied to the topic New person to the group in the forum General 13 years, 9 months ago
Welcome Terry, My you have been through the mill. You will find some good support and understanding on this site and there is plenty of good information, but best of all there are some real nice people:-D
Kindest reagards – Vasbyte
David
Perkymite started the topic Dia – you OK. in the forum General 13 years, 9 months ago
I have not seen a post from you for awile Buddy – you OK?
Kindest regards – vasbyte
David
Perkymite replied to the topic NIGHT CRAMPS in the forum General 13 years, 9 months ago
Just after I had my SCT, Dec 09, I had night cramps a lot now it is just the occasional cramp in my legs at night.
I do suffer from very cold legs at night and if I stick one out from under the duvet I am in trouble, hence the reason I am sitting at my computer at this hour 🙁 .
Kindest regards vasbyte
David
Perkymite replied to the topic For Tom – not for the sensitive! in the forum Off topic 13 years, 9 months ago
Good for you. I love the ability to "edit", WHAT Trade jazz?:-D 😀 😉
Kindest regards – vasbyte
David
Perkymite replied to the topic For Tom – not for the sensitive! in the forum Off topic 13 years, 9 months ago
It is the river Teign, they live in Shaldon by Teignmouth.
The wood is all ex fencing material and as such has all been " presure treated" so it should last for a good long time. Which, as I have no intention of going soon, is a real good thing 😉
Perkymite replied to the topic For Tom – not for the sensitive! in the forum Off topic 13 years, 9 months ago
I am still thinking about music.
The only tune I have settled on is Red Sails in the Sunset by Acker Bilk (for those to young to remember him he is a Trad (thanks Scott) Jazz musician). I am hoping to have this played as I am lowered into my grave.
I like all music, but not a great music collector, from operas to Bop so I am trying to…[Read more]