Perkymite replied to the topic Plasmacytoma in the forum Related conditions 14 years ago
Hi Helen, Sorry for the late reply my wife and I have been at Mousehole, Cornwall for the last two days celebrating our 49th wedding anniversary, a real nice trip.
I was diagnosed with Myeloma when I broke my neck getting out of bed, yes literally. Fortunately, although I was a fit as a fiddle, I knew something was serious wrong and I just…[Read more]
Perkymite replied to the topic Where Are You ? in the forum Off topic 14 years ago
Taunton, Somerset (and NO I drink Guinness not Cider;-) ). I am being treated at the Beacon Centre Musgrove Park Hospital.
Kindest regards – vasbyte
David
Perkymite replied to the topic Plasmacytoma in the forum Related conditions 14 years ago
Thanks Helen, so my Tumour was in fact a Plasmacytoma. The Consultant informed me that after looking at my medical records I had had undiagnosed Myeloma for at least two years, hence the 2/3 year prognosis. We live and learn. Or at least we hope we do :-/
Kindest regards
David
Perkymite replied to the topic bad news 🙁 in the forum General 14 years ago
Congratulations and thanks for the pictures. The very best of luck to you both.
Kindest regards
David
Perkymite replied to the topic Got appointment in the forum End of Life and Grief 14 years ago
Keep strong Roz. I am sure it will all work out for you in the end.
Kindest reagards – vasbyte
David
Perkymite replied to the topic Plasmacytoma in the forum Related conditions 14 years ago
What is the difference between a Plasmacytoma and a Tumour.
I had a large tumour which ate the 4th vertebrae in my neck. The following skeletal survery showed no other tumours or lesions. None of the Consultants has ever mentioned the word Plasmacytoma when discussing my tumour.
Kindest regards ? vasbyte
David
Perkymite replied to the topic Peripheral Neuropathy in the forum Side-effects 14 years ago
What is Lyrica?
Kindest reagards – Vasbyte
David
Perkymite replied to the topic A NEWBIE in the forum Newcomers 14 years ago
Hi Dave, Welcome to the site. I would not worry about the SCT I had one 11 months ago, I am 68, and I coped all right. I am not saying it is a walk in the park, like Tom, because people all react differently to it, so be wary and ask lots of questions when you get near the date to arm yourself.
kindest regards – vasbyte
David
Perkymite replied to the topic There is tough and there is tough in the forum End of Life and Grief 14 years ago
Hi Eve, Actually the number 4 bus is the one we use to go into town sometimes. However, I actually use the term ?if the No4 bus does not get me first? as a euphemism for all the things you can die of, not including Myeloma, which I think would fill a No 4 bus easily!!!! I think euphemism is the right word?
Kindest regards ? vasbyte
David
Perkymite replied to the topic Inappropriate language in the forum Off topic 14 years ago
found it, was a plumbing term used to refer to a tap that turns off water supply 😀 😀
Perkymite replied to the topic There is tough and there is tough in the forum End of Life and Grief 14 years ago
Thanks all for your condolences, you are a great bunch.
It just seems weird one minute I am laughing and joking with my Niece about MY funeral and how I was going to take my computer and mobile phone with me so she could keep in touch and the next I am helping her husband plan hers!
Over the years on this site I have come to realise how…[Read more]
Perkymite started the topic Inappropriate language. in the forum Off topic 14 years ago
Dear Webb Team,
When the site flags up inappropriate language could it be highlighted in some way? I have just typed a message and for the life of me I cannot see what is inappropriate about it but I cannot post it!:-S
Kind regards
David
Perkymite started the topic There is tough and there is tough. in the forum End of Life and Grief 14 years ago
About 4 weeks ago my niece, a delightful lady of 59, full of life looking forward to her 60th birthday next year and already planning the celebrations was told she had a Glasblastoma (a brain tumour). This morning she died. She was a really nice person with a lovely personality; she turned heads wherever she went. Spanish waiters hovered…[Read more]
Perkymite replied to the topic WELL THE DEVIL IS BACK in the forum Treatment 14 years ago
Chin up Jo. the is the time to Vasbyte like mad 🙂
kindest regards
David
Perkymite replied to the topic Missing thread in the forum Off topic 14 years ago
How about "Having Myeloma is realy great because you meet such nice people!!!!"
Delete to your hearts content. 😀
Kindest regards – Vasbyte
David
Perkymite started the topic date & time stamp. in the forum Off topic 14 years ago
Hi Web Team, Is it possible to put a date and time stamp on the original post of a thread, the same as the follow up posts in a thread. Only a small thing but it would be nice to have.
Thanks for all your good works behind the scenes
Kindest Regards
David
Perkymite replied to the topic Feeling very new to all this! in the forum Newcomers 14 years ago
Welcome (?) Abi, this is a very good site for information, it is dedicated solely to MM as you no doubt noticed. There is a lot of old information out on the WWB so be careful when surfing.
With your first appointment Monday it will probably be too late, but some people on here take a recording device to the Consultation. This has many…[Read more]
Perkymite replied to the topic 3 Months Post SCT in the forum Related conditions 14 years ago
Glad to hear you are doing well Jet. I keep meaning to ask everytime I see it mentioned, How is Revlimid administered – tablets?
Kindeste regards – Vasbyte
David
Perkymite replied to the topic Hangers On in the forum Side-effects 14 years ago
Sorry to hear you had a bad turn Dai, keep going Buddy.
kindest regards – Vasbyte
David
Perkymite replied to the topic 9th November for Dai in the forum General 14 years ago
I think Helen's interesting point that the Blood Test "belongs" to the Doctor is where we are wrong.
All information regarding a patient should "belong" to the patient. The Hospitals and Surgeries have it and control access to it but the information should be the patients and if the patient wants a copy of it, it should be freely…[Read more]
