Thanks everybody.

There is some resonance in what you say Dai in that I only had the neck tumour. When they did my skeletal survey they could not find any other bone lesions.

I will have to ask at my next consultation ? drat I am going to have to wait 3 months now! 😀 😀

Had to stop my daily walk I have picked up the chest infection…[Read more]

Hi Etta, Welcome (?) to our little band, I say little it seems to be expanding this year. I was diagnosed in Jul 2009 and to this date I do not know what stage I am at. As Bridget says some Doctors think modern medicines have made it outdated.

I look forward to sharing your journey.

Kindest reagrds – vasbyte

David

Welcome to the site Terry, reading your post I feel a bit of a fraud!!

But then I look at the xray of the titanium in my neck holding up my head he he. Even Doctors are amazed that I have got so much movement back. I was diagnosed in Jul 09 and broke my neck getting out of bed. I had a massive tumour which ate the 4th vertebrae for…[Read more]

Hi Ted, Happy to help.

SCT is Stem Cell Transfer. Basically, and there are variations on treatment, they give you Chemotherapy to try to get the paraprotien cells as low as possible. They then take Stem Cells from your bone marrow in a Auto SCT, or from a donor in an Allo SCT. Having got the Stem Cells you then go into hospital and have a…[Read more]

Sorry to hear the bad news Gill but I am with Dai on this, what he says does makes a lot of sense.

I have been living with the Sword of Damocles, like us all I suppose, and I have now passed my first ?Sale by Date? (July 1010). I feel good and have just been given 3 months clearance before my next appointment. So do not give up just ?Damm…[Read more]

Great news Jet, you do whatever keeps you strong.

Kindest regards – Vasbyte

David

I think it is a good idea and I am sure the Myeloma Team will take your request onboard.

Glad you are back with us Min.

Enjoy your holiday

Kindest regards – Vasbyte

David

Hi Carol, You are right about "grit your Teeth". My South African family told me of an Africans word, Vasbyte, I use it all the time now to remind myself if any doubts start to creep in that I am not going to live forever 😀 😀 . It means Bite Hard in the sense of english grit your teeth and get going.

Kindest regards – Vasbyte

David

Welcome Linda it is nice to hear from you. Your Mum muat be real proud of her very active family. Keep up the good work and regards to your mother.

Kindest regards

David

Hallo Peter and welcome. It is really nice to hear from people like yourself, it gives us all so much hope and helps to cement our postive vibes in place:-D

kindest regards – vasbyte

David

Well done Jo and congratulations.

Mo and I have been married 49 years on the 22 Nov 2011, actually we renewed our wedding vows on our 35th wedding anniversary so we have also been married 14 years he he.

When we met Mo was 16 and I was still 18. I was a very young soldier and she had dire warnings from everybody that you cannot trust a…[Read more]

Great news Liz and well done to Kev. Enjoy your travels, Mo and I have spent the year on various travels from Scotland to Trier. We have had a great 9 months.

I go for my appointment this Friday and I feel as fit as a fiddle so I am not really prepared for any bad news :-/ because I EXPECT it to be good and that is that.

Kindest…[Read more]

Just got back on the forum and read this post.

I had my SCT Dec 2010. I get small acne type bumps which are mildly itchy. However, I get only one or two, normally on my forehead and neck and they seem to go as fast as they come so I would not describe it as a rash.

Kindest regards ? vasbyte

David

A warm welcome to you both we all will look forward to your taking part in our little group.

Kindest regards – vasbyte

David

Hy Gilll, fastly abot the speling. I am, and always have been, a terrible speller this is compounded by being a lousy typist as well! I was so pleased when Word Processors came along with a Spell Checker. What I do is type my missive in Microsoft Word and then ?copy and paste?, which is exactly what I am doing now.

Interested about the Flu…[Read more]

Hi Aileen welcome (?) to our merry band.

You have selected the right site it has bags of information, which is up to date. You will find I think a good bunch of people here from Carers to sufferers and no matter what you are about to go through most likely somebody on here will have done it, bought the tee shirt and thrown it away.

We look…[Read more]

Hi Ivan, just so you can compare my Paraprotien were 33 when a Tumour in my neck ate my 4th Vertebrae. After Radio/operation/Chemo and an SCT I am now at 2.3 and have been there since November 2010. This is for information only and as Helen says it can be different in each person so do not take my readings, for example, as a bench mark for…[Read more]

I am right behind you Nettie, well not quite right behind you well ok mayby a yard, ok a mile behind you 😀 I spent 15 years in the Parachute Brigade and I am terrified of heights !!!! My £1 or so will be on it way, best of luck. And remember Vasbyte!

kindest reards

David