Perkymite replied to the topic WORRIED SISTER in the forum Newcomers 14 years, 10 months ago
You could not have come to a better place. You will find a real nice bunch of people here some Careers, some with Myeloma – like me and some just friends or relatives. They have a wealth of experience and will no-doubt be happy to help and support you. If you have questions do not be afraid to ask. If you just want to rant and rave how unfair…[Read more]
Perkymite replied to the topic Disability in the forum Off topic 14 years, 10 months ago
Hi Sean, Best of luck for today I sincerely hope things turn out better than you thought.
If you are going to try for DLA or any such benefit find the local Macmillan Nurse and get her to fill in the forms for you. I do not care how clever and articulate you are, "they do it better!" 😀 . I went to them and got my blue badge and Benefits…[Read more]
Perkymite replied to the topic First report post SCT in the forum General 14 years, 10 months ago
Yes, you are right Amelie. I am just greedy:-D. Just wanted that magic ZERO pp. Who knows I might still get there 😉
kindest regards
david
Perkymite replied to the topic LOST!!!!!!!!!!!!!!!!!! in the forum Off topic 14 years, 10 months ago
Try standing in front of the mirror naked – I find that helps a lot 😀 😀 😀
David
Perkymite started the topic First report post SCT. in the forum General 14 years, 10 months ago
Hi Guys and Girls,
I had an excellent first meeting with my Consultant, 30 days post SCT. He seems very pleased with my progress which he thought was ?ahead of the game?. I must admit I feel good and fit ? as long as I do not overdue it. He has said I can now mix with the human race, book holidays and start cycling (sorry Eva giving up…[Read more]
Perkymite replied to the topic Relapse official in the forum General 14 years, 10 months ago
Well, that is good news Keith. Well done:-D . Please keep us informed as your treatment moves on. Perhaps another 2.8 years remission awaits you after your next SCT.
Kindest regards
David
Perkymite started the topic hair already?. in the forum General 14 years, 10 months ago
Hi all. I had my SCT about the 6th December and lost my hair must have been the following week or so and left hospital on the 15th bald as a coot (is a coot really bald – where does that expression come from).
I noticed today that I had to have my first shave. I do not remember my hair returning so fast last time. Everybody is waiting with…[Read more]
Perkymite replied to the topic Pomalidomide in the forum General 14 years, 10 months ago
Well done Gaye just keep going. No doubt we shall all be interested in your progress so please keep us posted. Just what is Pomalidomide though:-S ?
kindest regards
David
Perkymite started the topic how true!. in the forum Off topic 14 years, 10 months ago
You will need sound for this but it is real funny, well, at least I thought so:-) It is in Windows Media format so you should be able to watch it without Flash.
Perkymite replied to the topic Remission and risk of infections in the forum General 14 years, 10 months ago
Hi Amelie, Great news he is in remission, has John had the Swine flu Jab? The annual Flu jab works for me before I was 65 and could get it on the NHS I was always having colds, some would last months. Since I have been having the annual flu jab, touch wood, I have not had a cold I can think off (3 years now).
I go for my my first check…[Read more]
Perkymite replied to the topic dad diagnosed on Xmas eve in the forum Newcomers 14 years, 10 months ago
Jenny, MyelomaUK will send you an information pack free of charge. It contains ALL the information you could every want on Myeloma. Give them a ring now and you will have it by first class post ASAP.
Kindest regards
David
Perkymite replied to the topic Relapse official in the forum General 14 years, 10 months ago
Tough Keith, I wish you the very best of luck on Monday.
You have beaten it once and I am sure you are the sort of guy that can do it again. Seconds Out, clang, clang of the bell – Give it h**l buddy.
kindest regards
David
Perkymite replied to the topic Keep your fingers crossed for me please. in the forum Carers 14 years, 10 months ago
Ohh I very much hope you get it Min.
My wife, at 66, still works 10 hours per week but she has her own reasons for wanting to do that and I totally agree with her. However, we so much enjoy our time together and as has been said one of the nicest is laying in bed in the morning with a cup of tea and knowing you do not HAVE to get up:-D…[Read more]
Perkymite replied to the topic Biopsy in the forum General 14 years, 10 months ago
2 years 8 months wow wow wow. That is excelent. I just hope you are wrong and you are just having a "bad hair week";-)
Perkymite replied to the topic update on allo sct in the forum Treatment 14 years, 10 months ago
Actually Girls, my original hair was a very light mousy brown. Very fine hair and dead straight. The new hair which grew back was very dark and a lot thicker and curley, but, I still had my bald patch. So all my family are waiting to see what will happen this time:-S
kindest regards
David
Perkymite replied to the topic dad diagnosed on Xmas eve in the forum Newcomers 14 years, 10 months ago
Hi Jenny,
I am very sorry to have to welcome you to our little group. You have come to the right place though, you will find all the information you could wish for on this site and there is a MyelomaUK Nurse on the other end of a telephone to talk to if you so wish.
I regret to say that 70 does, from my experience only and I am 68, seem to be…[Read more]
Perkymite replied to the topic Biopsy in the forum General 14 years, 10 months ago
Hi Kieth, Early Jan is going to be a busy time I go for my post SCT results on the 11th.
Are you getting a lot of bone pain? Apart from the occasional "stab" from one of my toes I do not seem to have that problem. Mind you my original skeletal survey did not show any lessions apart from a bl**dy great tumour in my neck:-0 .
kindest…[Read more]
Perkymite replied to the topic Idiot on Dex?? in the forum Off topic 14 years, 10 months ago
We lost both our dogs in 2010, first Murphy (13 years) our Springer and then Guinness (15 years) our Border Collie. I buried them next to each other in the garden. We would both love another dog but our circumstances do not allow it.
We wish you all the best with your new friend (green with envy)
kindest regards
David
Perkymite replied to the topic update on allo sct in the forum Treatment 14 years, 11 months ago
Well done Shirley, the sore mouth and throat was my biggest bind, apart form the infection of course.
Great to see you are doing so well.
kindest reagards
David
Perkymite replied to the topic Second hurdle starts tomorrow in the forum General 14 years, 11 months ago
Dear Roz, you will always be welcome here. When you feel like dropping bye please do, it will be nice to hear from you. Bye for now.
kindest regards
david
