Perkymite replied to the topic Our Photo's in the forum General 15 years, 1 month ago
I see we have a couple of David Baileys(I think that is how he spells his name)
Very nice pictures, well done Tom a good idea.
kindest regards
David
Perkymite started the topic cancel putton. in the forum General 15 years, 1 month ago
I note we seem to have lost the cancel button e.g. you start to post something and then decide not to. You need a Cancel Button to take you back to the forum
Kindest regards
David
Perkymite replied to the topic Horizon this evening in the forum General 15 years, 1 month ago
Hi Mari,
Yes, I watched the same programme. Personally I do not think it will help me but it is so encouraging for my children and grandchildren.
I believe that one day there will be a cure for all cancer just like other diseases, such as TB and Smallpox.
I was born 25 years too early:-(
kindest regards
David
Perkymite replied to the topic Ice cubes in the forum Treatment 15 years, 1 month ago
Hi Min,
My impression on this site, and it is only an impression, is that very few reach zero pp count prior to stem cell harvest. For my first harvest I got down to 2.8 and for my second it was 1.8. I am now off Chemo until my sct on 22 Nov.
To be honest I have never really understood the logic of it all and when I try to explain it to…[Read more]
Perkymite replied to the topic Scenes from where we live in the forum General 15 years, 1 month ago
Great picture Lee, spoilt by the duck on the left not looking at the camera 😉 .
kindest regards
David
Perkymite replied to the topic Done it in the forum General 15 years, 1 month ago
😀 Well done Roz. i hope Michael gets better soon:-) chin up.
Kindest regards
David
Perkymite replied to the topic Ice cubes in the forum Treatment 15 years, 1 month ago
I am not a tecky so I do not really know the ins and outs of the old Ice Cube trick. However, I must assume that the ice somehow restricts the flow of blood around the mouth area. If you are restricting the flow of blood then surely the Chemo drugs are also restricted in some way. Do not know is the answer!
I am going to do without the ice…[Read more]
Perkymite started the topic Ice cubes. in the forum Treatment 15 years, 1 month ago
In the discussion with my consultant about the SCT I mentioned sucking ice cubes to alleviate problems in the mouth and throat. His words were "You are welcome to do that if you wish, however, the object of the exercise is to kill of Myeloma cells and if you restrict that by blocking the Chemo from getting into your mouth area it rather defeats…[Read more]
Perkymite replied to the topic New Myeloma Drugs in the forum General 15 years, 1 month ago
Hi Gaye, Thanks for the heads up on that I will have a look.
kindest regards
David
Perkymite started the topic 22nd of November. in the forum Treatment 15 years, 1 month ago
Hi all,
Well my appointment on Friday went very well, pp still low at 1.9. They have now set my SCT for start date 22nd Nov. (my sons 47th birthday and two days before our 48th wedding anniversary.
When I got home I realised that I still did not really understand one part of the process. When you are given the Chemo (Mapahlan?) what does it…[Read more]
Perkymite replied to the topic Welcome! in the forum General 15 years, 1 month ago
I think I am getting the hang of it here. Just uploaded a photograph Avatar. The first one was of my dog Guinness but guess it was tooo large.
Spellchecker?
kindest regards
David
just trying an edit : I changed my avatar but you have to re-sign in before it uses the new picture – which makes sense.
Perkymite replied to the topic Welcome! in the forum General 15 years, 1 month ago
well, 😎 , I got the shades on here because I am trying to hide my embarrasment – Yes, I had not signed in so could not see post and reply buttons. Ouch.
I have tried to attach a a video file just to see what happens. Tried the video attachment it works ok. Have a look at it it is a really funny.
kindest regards
David aka Perkymite
