[AlanChantParticipant]

Hi Dawn,
I’ve been on the MUK 5 trial for 18 months, which compares Carfilzomib against Velcade. So far its been very good, with paraproteins undectable for the last 12 months…so, so far so good!
Best of luck with the treatment.

Alan

[AlanChantParticipant]

Hi Deborah

I started on the trial at the Churchill Hospital, Oxford and have just finished the first 6 months part of the trial. I seem to have benefitted from the trial to date, and but would be happy to respond to any specific issues or concerns that you have.

Best wishes

Alan

[AlanChantParticipant]

Hi Eve,

Actually your response was more helpful than you might have thought.

Most people talk about the problems they have when they take Dex, but I related to the weakness that you menetioned on the "withdrawal" days. Prior to going on the trial I had been on Dex for 2 weeks and so I think coming off had a lot to do with how weak I felt.

What other side effects did you have with Velcade? Did you suffer from neuropathy?

Best wishes

Alan

[AlanChantParticipant]

Thanks for the welcome Eve.

Haven't found the person you referred to but perhaps they will find me instead:-)

I had quite a reaction to the new drugs on Day 3 of the trial – maybe just because a great cocktail of drugs just hit the system – making it feel weak and aching. Happy to hear from others on more conventional treatment, including Velcade, to see if anyone had the same immediate reaction and for similar reasons.

Alan

[Author]

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