Hi Antoinette

Im Alison, its my Mum with MM, she was diagnosed last Nov aged 57.

I can only imagine how you are feeling about your diagnosis, we are a similar age im 37 I have 2 boys aged 8 and 5 and I know that as a Mum you worry about the kids rather than yourself.

Im sure you will find this site to have all the information you need…[Read more]

Hi Trish and Jacqui

I have just found out they have Caphosol it on the ward my Mum is going on. Thats another question off my list!

Alison x

Me again, I have just googled Caphosol, crikey "at a price" is right. Heres hoping Mums GP prescribes it! It sounds great though. Hope it works

Alison x

Hi Jacqui

I was thinking about you this morning, I remembered the date you were going into hospital. I hope you are all settled and comfortable. Is the hospital far from home? I hope it is not so it makes it easier for your family to visit.

Well, you have had the Melphalan…so here goes. Like you say, you have responded very well to your…[Read more]

Hi David,

I can imagine that the "happiness guage" was at >10 when you tasted the Guinness! I think you deserved it after all that you went through.:-)

Thanks once again for posting this, im going to try and show my Mum ( she prefers not to know any ins and outs about things ) I really do think it will be helpful to her. A friend of a…[Read more]

Hi Paul,

Im just wondering how things went with your "priming" – what does that entail please and what sort of initial tests did you have?.

Its my Mum with MM, diagnosed Nov 11 aged 57. Had 5 cycles of RCD on Myeloma IV trial and due for initial appt re SCT on Thursday this week.

I hope all runs smoothly now for you on your road to…[Read more]

Hi David

Its my Mum with MM. She is soon to have SCT. I have just been reading Musings from Ward 9. I am so glad I did, it made me smile, laugh and brought tears to my eyes. Its made me feel much more positive about whole thing now in so much that you didnt feel terrible ALL the time. Mum goes to see the consultant on thurs and hopefully…[Read more]

Hi Eve

You were kind and thoughtful enough to reply to me when I first posted on here about my Mum.

You have had the most awful time of late. Im sorry to here about your Grandson and your friend passing away. There is no wonder you feel like your world has stopped, its so unfair. I understand Slim is having his SCT today, I wish him…[Read more]

Hi Dai,

Sorry you have been poorly, hope you are on the mend now. Just thought how lovely of you not wanting to spoil the ballet for everyone – what a trooper!

Take care Alison x

Hi Vicki

Light chains have never been mentioned by Mums consultant, its always the pp levels that have been the "magic number".

Andy is right though, it seems from reading on here that everyones treatment and reaction to the the treatment varies so much, and that is one of the things I am getting my head round. It certainly isnt a "one size…[Read more]

Hi Vicky and Colin

Just thought id say a quick hello.

Its my mum with Myeloma, she was diagnosed Nov 2011 aged 57 and has had 5 cycles of treatment and her PPs are also down to 1.2 from 31.5 at the start of treatment. Shes to see the consultant next week re SCT. Its all very scary stuff isnt it?. In a peculiar way we (as a family) want…[Read more]

Hi Ann,

Sorry I cant help with a specific answer. My Mum was given a spreadsheet with all the different medication and on which day to take each in the cycle. Could you phone the Haematology ward at your hospital?. Just an idea….

Mum had 50+ tablets to take on some days and found it hard going, but at least she drank her quota of water…[Read more]

Morning Jacqui,

You must be very proud of your daughters! Like you say they have started their own new journey, I am sure they have friends they can share the load with and with your eldest having exams before you go in hospital, she will have plenty to concentrate on – other than this awful Myeloma. I think positive is the only way to be!

I…[Read more]

Hi Jacqui,
I hope you are feeling well, and pleased you are feeling positive about your SCT. Mums on the Myeloma x1 trial and is has just finished her 5th cycle of Rev,Dex and Cyclophosphamide. She too has responded well to treatment so far. You are abit further ahead in your treatment. I see you're in for your SCT the day after Mum has her…[Read more]

Hi, im Alison.

Im new to the forum too. My Mum was diagnosed Nov last year also. She is now 58.

Im sure you will find a friendly welcome, support and advice here.

Do you mind if I ask what treatment you are on?

Take care

Alison x

Hi Ann and Pete

Im sorry you have to join the club, but im sure you will find lots of answers on this site.

My mum was diagnosed Nov 2011 at 57. The shock and worry is still very fresh and raw, but day by day it seems to be getting easier. Her initial treatment was really not as bad as we expected (it makes me laugh when I say we, its not…[Read more]

Hi, thankyou for your warm welcome. I am glad I have found you.
Phil, its fantastic to hear you are in Stringent Complete Remission – long may it continue. Also, its encouraging that you were on the same treatment as my Mum. Do you take any meds now?

Tom, moan, winge and shout? Me? My hubby would tell you I am an expert in those fields -…[Read more]