Hi Sarah, thankyou for that. Your poor hubby, sounds awful :-(. How is he doing now?

Hey Helen, no, not heard a thing. Nothing has been done at all, no further investigation, no xrays. Probably to do with the bank holiday. She goes to see haematology consultant on Thursday so we should find out then what has been tarranged.Could I borrow…[Read more]

Hi Mavis,

Thankyou for your reply. Did you have the plasmacytoma before or after your MM diagnosis? Did you have to have radiotherapy after surgery?

Mum is still waiting for
further investigations, its frustrating that the medics don’t consider it as urgent as we do, and the
bank holiday weekend doesn’t help! Still, mums got a stinking cold…[Read more]

Hi Helen, no, you weren’t too blunt! I always take your comments on board, and value your opinion. Just hope it doesn’t take long to sort a biopsy out. I hate the waiting game 🙁

Retirement! Good for you! You will not know how you found the time to go to work. I bet there is a market for your knitwear, family orders will keep you busy for a…[Read more]

Hi Eve
Thanks for your reply, Mum reminded me she had an xray in January and no sign of this mass?! Then. Been told that bloods were fine all the time. We don’t ask about pps ss we got abit obsessed. I will remain positive as I

,
ts the only way to be. In hopes I can shove the Myeloma back in its box!

Stanley, read up all you can, know…[Read more]

Hi Stanley, nice to meet you:-) better under different circumstances, but here we are! Good lu
ck with your treatment. Please keep us informed. Did it start yesterday?

Hi Helen, thanks for your reply. Mums to have full body xray, its been 2 years sinc e the last one. Her consultant is on annual leave, which is typical. This was an incidental…[Read more]

Hi Helen

Great to see you on here and even greater to hear that Velcade has been worth it for you.

Budget setting for your daughters wedding hehe, good luck with that one!

Have a lovely trip to Madeira, my in laws went last year and really enjoyed it.

Love Ali x

Dear Vicki

Yes get with it! Tom and Andy and Eve are on!

Mum is good thanks, tiredness is an issue for her too. Some days worse than others and seemingly no rhyme or reason to it. Also, mysterious pains that come and then go again just as quickly….we try not to read anything into it

When Mum goes away she does take the thermometer with her,…[Read more]

Hi all,

I must agree, the treatment my Mum has had from the NHS has been great and I for one cannot thank them enough 🙂 I Wish you both all the best on your husbands journey.

Sorry to butt in on this post, just want to say hi to Vicki and Colin. Im sorry I have not been in touch for a while, had trouble logging in to the new site, but I have…[Read more]

Hi Helen,

I hope you are feeling ok today:-)

Your grumbles about the department made me smile (especially the bit about the loo) best thing I find is to put paper down first and the trickle cannot be heard! I work in a hospital and a colleague and I have tried this,one in the loo while the other stands in the corridor listening! We do…[Read more]

Hi Jill and San

Im not sure if the risk is just for maintenance treatment, as I suppose potentially one could be taking it for a longer period of time?

Worth the question though.

San, isnt it awful sitting and waiting around in hospitals, its like torture, especially when you are really not feeling up to it. I hope they get to the bottom…[Read more]

Hi Scott.

My Mum got 8 million or so cells in the one sitting, enough for 2 transplants.

Good luck with it all 🙂

Love,Ali x

Happy birthday to you, happy birthday to you, happy birthday dear Frank, happy birthday to you.

Love Ali x 🙂

Hi Emma

Its lovely to hear your Mum is at home after such a long time in hospital, and that the treatment has been worth it 🙂 Is she very mobile now?

I know its bittersweet, but you have to have hope dont you? Im trying to push it to the back of my mind, and there are days I dont think of it at all! Enjoy each other, every day. Thats what…[Read more]

Helen,

I'm so sorry to hear its a relapse. You are more than entitled to have an all over the place head. Once its straight again , focus and give it some wellie.

Like Tom, I'm sending a very large hug your way.

Flipping heck, you feel so well too, what's that all about?

Love Ali x

Hi Vicky

Im going to follow Helens protocol next time, Im not farting around pretending it will be ok (like it used to be:-( )

Do you know, I was just starting to feel a little easier, then I remember, and I could just cry.

Im sure Mum will have a fantastic time on holiday (armed with antibiotics), maybe you and Colin should start…[Read more]

Hi San

Hows your Mum doing? any nearer to coming home?

Hi Helen

Thanks for that. When Mums been ill before theres been times when Dads phoned in to the ward and they have said go in, other times hes had to phone emergency out of hours doctors, so never very sure! The thing is this last time my Dad was working nights and half way round…[Read more]

Hi Vicky

Mum was discharged tea time yesterday. Shes still not well but shes now on oral antib's so able to come home. Shes got a chest infection. When her temp got to 39.7 Dad rushed her in.

What we dont understand is when to take action when she is unwell. I suppose its been brewing for a while….cold, cough and muzzy head. She…[Read more]