[AliParticipant]

Hi

I have eaten all of my chocs and biscuits very quickly this year, once they are gone I can start with the healthier eating (well that is the plan anyway)and its safe to say I dont think I can cram anything else in, im craving a salad!

Funny you should say about infection, Mum spent last Sat evening in a&e, high temp 38.5 and no signs of coming down whilst at home even after the usual paracetamol. Was advised to go in to be checked over and released at 2am. Temperature went back to normal. She has had a nasty cough/cold for some weeks now and 1 lot of antibiotics.

Mum starts her immunisations later this month, so she is getting closer to being able to go abroad.

Thanks for replying

Love Ali x

[AliParticipant]

Hi Helen,

Thanks for that. Mum has found that week 4 (no meds) she can eat normally. Its just getting used to the change and adjusting as required I suppose. Mums on 10mg of Revlimid I spotted today as well as the Vorinostat.

We has a wonderful Christmas this year thankyou – my 9 year, when asked what he would like for Christmas said "I would be happy with just a box of chocolates, id rather have my family" . How true is that?.

Any hols booked yet for 2013?

Love Ali x

[AliParticipant]

Hi Megan and Phil

Well done and WELCOME HOME!

I havent been on here quite so much just lately, im trying to make the most of life being more on an even keel:-) Although I have been tuned it to your thread.

Take it easy now both of you

Love Ali xx

[AliParticipant]

Hi Helen

Swit swoo! Your pic is wonderful. You both look very glam:-)

Glad to hear the whoop has finally gone but I see you have the cold and cough like the majority of us.

My Mum has started her maintenance, nearly completed her first month of Rev and Vorinostat. She is getting on fine except for the fact she has like a shelf in her stomach and a constant feeling of fullness. So much so that for example today she just had fruit for lunch rather than the normal sarnie. She asked me to ask you if you had a similar feeling? She got a similar feeling when on Rev last time, just wondered if this is one of the side effects.

Thanks for your help in advance;-)

Love Ali xx

[AliParticipant]

To all

I wish you all a very merry christmas and a healthy and happy new year.

With much love Ali xx

[AliParticipant]

Hi Tina

Its lovely to hear you are now on the up and feeling much better.

My Mum had her SCT at the beginning of August and I have watched her improve week by week. We went to do the grocery shop today and she says she feels much better now than she did all of last year before diagnosis:-)

Wishing you a very Happy Christmas.

Love Ali xx

[AliParticipant]

Hi Megan

Crikey, just a few minor hiccups! Lets hope the rest of Phils stay goes according to plan and he has an uneventful stay:-)

Remember to look after yourself too

Love Ali x

[AliParticipant]

Dear Dai

I do hope you are on the up now, ready for the discharge on Friday and ready to enjoy the festivities.

Much Love Ali xx

[AliParticipant]

Hi Jean and Frank

What a relief for you both:-) Mum was just the same – in 1 sitting and millions of lovely cells. No pain no gain.

Try and relax now and have a wonderful Christmas.

Much love to you and your family Ali xx

[AliParticipant]

Hi Helen

Nice to hear from you. Look how far you have come in those two years. Crikey, who would have thought. I'm pleased to hear the cough has much improved, didn't someone say to you that it would be gone by Christmas? Well its not got long now to properly do one!

As you know, my mum is 1 year behind you Helen, just wanted to thankyou for all your comments and advise, you have been wonderful. So, I shall take this opportunity to wish you and your toyboy, oops sorry husband and your family a very merry Christmas and a happy and healthy 2013.

Much love

Ali and mum Margaret xx

[AliParticipant]

Hi Peggy

Just wishing you a very uneventful stay in hospital.

Much love Ali xx

[AliParticipant]

Hi Babs

Oh no! There's a lot of d&v going about around our way. I work in an NHS outpatient department and loads of patients are cancelling. I do hope that's all it is. Yes, mum was issued with domperidone. She had to take some on day 2, she said all of a sudden she felt nauseous. Been ok since though.

Hi Graham

It's encouraging to hear you have no adverse effects. My mum is apprehensive about the vorinostat, she had revlimid as her initial treatment so she's got her head around that one, I think its the unknown.

Love Ali x

[AliParticipant]

Hi Babs

It's so lovely to hear you are feeling so well at long last. My mum started her vorinostat and revlimid on Friday. She felt a.little sick after the vorinostat, do you? Wonder if it will subside when she gets used to them? .

Sorry its short, but I'm using my phone and not the laptop, its,a pain:-

Love Ali x

[AliParticipant]

Oh my gosh Emma

I have just been catching up with things on here and came accross your post. Im so sorry you to read your Mum is in hospital. What a worry. No advice to offer im afraid, I just hope you have gone on ok today with the the consultants.

Im sending a really big hug to both you and your Mum.

Ali xx

[AliParticipant]

Hi Tom

No snow, kids were annoyed at its no show. They wanted a snow day from school.

Yes your vodka drinking is well known on this site, I will have you know. Keep it up!:-)

Love Ali x

[Author]

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