Hi Bridget,
John had radiotherapy too – it wasn't bad at all.
Wish you all the best!
Love
Amelie

Thanks for the reply! May I ask if you catch a cold despite the spray is it then more tough and more difficult to get rid of?

I am really sorry to read that Keith. I send you all my best wishes and thoughts.

Roz, it is so beautiful and moving!

Thanks so much for your replies Roz and Mari!
I am glad to hear it isn't only John's GP who is suspicious about it.

Congrats – I am so happy for you!!!!

Dear Gaye,
Denmark and the UK was together at the bottom 🙁 As far as I understood it also concerned breast cancer, but still 75% survive so there are far worse diagnoses.
Myeloma UK seems to be a very effective organisation – I wish we had something like that!
Love
Amelie

Hi Tom,

Although John was diagnosed back in March I still sometimes can't believe this has happened and my brain starts to try solving the problem. Seriously I have caught myself thinking about how to transfer years between people as if it was data between 2 computers. The powerlessness is overwhelming. I know I can't rescue him, but this…[Read more]

Thank you Tom! It is actually a concert and I'm gonna play, but I really feel I also need to say something. I have been playing for them before, but now after my experiences with mm it of course means much more to me. Just before Xmas I read in the newspaper that our country is far behind in diagnosing cancer. Basically people only know about…[Read more]

Thanks for your reply, Vicky!
Sure they should also have checked you for mm earlier. I know there can be different symptoms, my point is that there is only checked for mm when other options have been left out and that is too late, especially when it is so simple to check.

Thank you Dai and Tina for the replies!

Why in h… don't all the GPs make a blood test if people have serious back pain?
The more I dig into this disease the more frustrated I get because of lack of awareness, slow access to new treatments etc. 🙁

Thank you! It is good to hear that you don't feel any serious side effects. As far as I have understood it is at the moment mostly used for relapsed patients and there are very different opinions on using it before the relaps. I wish it was more simple!

Dear Roz, I am so terribly sorry to hear about your loss. You have done so much and been a fantastic support for Michael. My heartfelt condolences.
Love
Amelie

Thanks for your reply, Gaye!
And good that your GP was awake!
My friend John went to the doctor with his back pain and was sent to the physiotherapist. Only when he couldn't get out bed anymore he was taken to the hospital and after faulty diagnosis of lung cancer they finally detected the mm. I can't stop thinking that if they had thought of…[Read more]

Thanks for the tip – I will call the nurses. 🙂

Hi everyone,
John went to see his doctor this week and asked about the Revlimid maintenance. The doctor said he is monitoring the development closely but for the time being he doesn't recommend it to patients since it has too many negative side effects, which a new American trial had proved.

I don't understand that, because I always saw…[Read more]

Dear Bridget,
I am sorry that you have to go through this and I send you all my best wishes.
Love,
Amelie

Thank you Gaye, and all the best wishes to you too!

I don't know what I would have done without this board. Life has changed a lot since my friend John was diagnosed in March.

Luckily it goes him very well now. He got his sct back in August and now he is working half time expecting to work full time in February. Despite some eczema and some…[Read more]