[AmelieParticipant]

Thank you Tom, is there any chance for that? I thought 2nd sct would always last shorter than the first one 🙁
I know some people have absolutely no result of their sct, and compared to those we have been extremely lucky. The almost 2 years after the first sct has been absolutely wonderful. Just hoped for a bit more.
Thanks again,
Amelie

[AmelieParticipant]

Thanks for your encouraging message – good to hear it can be easier 2nd time.

As far as I remember the cold "thing" I heard of wasn't eatable, I will try to surch.

The problem is that the doctor says very little, and John is certainly not good in asking questions, that is why we always know so little. 🙁

Love
Amelie

[AmelieParticipant]

I am so sorry – I send you all my best wishes and thoughts!
Love Amelie

[AmelieParticipant]

Hi Phoebe,
Just wanted to say that I am amazed about your initiative and good work. People like you make a difference. Your dad must be proud of you!
Love Amelie

[AmelieParticipant]

Thanks for your reply. I don't have myeloma, but my friend John has and he was not offerede Revlimid after his successful sct in August 2010. Now the myeloma seems to be back and I can't stop thinking that it might not have happened if he had got the Revlimid maintenance. On the other hand we wouldn't know if he had tolerated it.
Now we are waiting to hear when he is going to have further treatment and we expect one more sct.
Does anyone know if Revlimid can be given as maintenance after the second sct?
Love
Amelie

[AmelieParticipant]

Thanks for the reply – I will look for information on that trial.
All the best to you.

[AmelieParticipant]

Hi Carol,
Thanks for sharing your experiences with Revlimid. I am very interested in this since it is never given here (I am in Denmark).
Are you in the UK? And is Revlimid maintenance normally offered after a sct?

I know Revlimid is not well tolerated by everybody but it is still nice to have the possibility to try it.

I wish you all the best and good luck with all your hobbies!
Amelie

[AmelieParticipant]

Thank you Gill!
Did I understand you correct that Stephen has an ok pp, but bone damage anyways?
Thanks for the good wishes and same to you!

[AmelieParticipant]

Thanks a lot for your reply!
John had serious skin problems and he has been regularly to the dermatologist who checked for everything including AIDS (!), but they never saw any link to his MM which I find VERY strange since I have read numerous reports from mm patients telling about different skin problems.
However they finally gave him Antihistamines which help very well. So yes I guess it could be shingles, we will see.
Best wishes
Amelie

[AmelieParticipant]

Thanks for the explanation and your good wishes – we will pray for you as well.
Love
Amelie

[AmelieParticipant]

Oh I hope I am not confusing things. Cardamom is a common spice which is used for cakes ore Indian food. From what I can google cardamonin comes from cardamom:
http://natural-field.en.alibaba.com/productshowimg/455860924-212284429/Manufacture_98_cardamonin_cardamom_extract_.html

[AmelieParticipant]

OMG – that is funny! I have made a lot of cakes for John and we started joking that is was his medicine. If cardamom is effective it might be true! 😀
Thanks for posting!

[AmelieParticipant]

Thanks Kay, that is nice to hear!
What exactly is HB?

I am looking very much forward to hear what the doctor said on Tuesday. It is going to be a tough couple of days though – on Monday my favorite aunt is having a heart surgery 🙁

[AmelieParticipant]

Thanks a lot for your replies.
His PP has been raising for more than 3 times, but everything else seems to be perfect, so the doctor didn't seem worried last time.

Today John was less concerned and said the pain could just be old age, just like you said Tom. The pain in his ribs isn't new, already when he was in the hospital he was told they were affected by the disease, but the hip/leg pain is new. Hopefully it is nothing serious.

Love
Amelie

[AmelieParticipant]

Just wanted to send you my most positive vibes!

[Author]

Posts