Thanks Richard for your advice and you had a teaching job like Graham didn’t you Carol. Definitely best out of it with all the stress. Graham has taken up painting and did singing lessons for a while. He is now learning some new computer languages and says he thinks his memory has improved a bit lately but he agrees that you have to keep your…[Read more]

Hi Susie
Graham is on Revlamid (Lenalidomide) 10 mg on days 1-21 out of 28. He also takes Vorinostat 100 mg on days 1-7 and days 15-21 of 28. He was transferred back to our local hospital 100 days after SCT and it was in October 2014 that he was randomised and then started his maintenance treatment. Until then we just assumed he had been…[Read more]

Hi
My husband is on the Myeloma XI trial and after SCT a year ago is soon to start his 7th month of maintenance treatment. His maintenance is Revlamid and another drug which I have forgotten the name of. He has one week per month on no treatment but the other 3 weeks are not so good and generally he doesn’t feel as good as when he was on no…[Read more]

Hi
My husband had auto SCT a year ago and definitely has memory loss since the transplant. He is now 57. He often finds it hard when he is speaking if I interrupt him as he then totally loses the thread of what he is talking about so I have to be so careful when listening to what he is saying. Not sure if this is chemo brain? He is definitely…[Read more]

Hi – are you taking Revlimid as part of initial treatment or as maintenance. My husband is taking Revlimid as maintenance along with something else which I can’t remember. He is also on the Myeloma XI trial and was chosen for maintenance while in remission – would have preferred to have been drug free for a while.
Angela

Hi
It’s nearly two years since my husband’s diagnosis now. It was during the first few months thatn I now wish I had had a bit of time off work but we were going through a reconfiguration and I didn’t want to take time off as I wanted to keep my job. It was 4 months of severe back pain before he was diagnosed with fractures of spine and then MM.…[Read more]

Hi everyone. This time last year my husband had had his Melphalan (heavy dose of chemo on Thursday last week and then the stem cells returned on the Friday. As we live near the hospital he was told he could come home until he started feeling a bit poorly so he stayed hom until the Tuesday and he was then in hospital for just over 2 weeks. After…[Read more]

Hi Tony and Robert
Thanks for your responses. I can understand totally not wanting to go on the maintenance treatment and both me and Graham were hoping that’s what was decided for him. As everything had worked so well for him this far he decided to git the maintenance a go and will probably give it another 3 months before making decisions to…[Read more]

I agree Richard. We will do a toast too. Hope you are keeping well.

Thanks Simon – same to you. Have a good one. Graham was preparing for stem cell transplant this time last year and we even wondered if he would be in hospital over Christmas but in fact he went in for STC in February. He is still in remission and I hope he is for a long time to come 🙂

I looked at your posting to see what your dilemma was with regard to multiple myeloma. However, I was totally surprised by your posting. You are definitely on the wrong forum to discuss the problems that you have. This forum is for people and their families who have multiple myeloma and I suggest you raise your question elsewhere.

Glad you enjoyed it Jean. The drummer is my mother (aged 77). She sang the best too. I think she missed her way!

Hi
My husband aged 56 had his stem cell transplant in February this year. When he came home from hospital he spent the first week upstairs so he was near the bathroom and didn’t have to manage the stairs at first. I was at home all of that first week. For the next 2 weeks I worked half days so I was still there to prepare meals for him and make…[Read more]

Hi Sarah, good luck with your fundraising and I hope your Dad goes into remission after his treatment. My husband who is 57 now was diagnosed May 2013 after fractures of his spine were seen on an MRI scan after 4 months of intense back pain. There was never any question on whether he would go for the trial or not and he asked for it and…[Read more]

Hi Tony
Can you remember when you started the baby injections. My husband had his SCT in February 2014 and hasn’t had an injections yet. We go abroad in September and just wondered if he needs some before then. His GP have had no letter asking them to start them and I have chased up the hospital to ask them for a protocol of what he needs and…[Read more]

Hi Robbo
My husband was diagnosed at 55 with Stage 3 myeloma and fractures in his spine. His pain was terrible and initially he could easily collapse to the floor with the pain. He had to sleep for 6 months in a recliner chair as he could not lie flat. For 3 months he had to undergo very painful physiotherapy prior to his diagnosis but…[Read more]

Brilliant article Sarah. You are both similar ages to us. My husband had his STC in February and now in complete remission. His job was restructured 9 days after his STC so he took redundancy. I wondered if he goes for a new job if he needs to divulge his medical condition. I have carried on working full time and I think this helps me and I…[Read more]