We did the run in awful hot weather. We have so far raised nearly £300. If anyone wants to sponsor us after the event I think the just giving page will be open for a few more weeks. Graham was told yesterday that he is in full remission so hoping this lasts a long time.

Richard – sorry to see your STC was not as successful but hope you are…[Read more]

Hi Richard
The only results we were originally interested in were the neutrophils coming above 1 so that he could go out again. When we were last at the clinic we asked about paraproteins etc but were told that the tests were inconclusive yet so have not officially been told that his bloods are clear of the paraproteins. We won’t get result of…[Read more]

Thanks Megan – I will need the good luck and I am very optimistic that the bone marrow news will be good.

Hi Scott, How have you gone on since last week? Graham went back yesterday and like you his neutrophils have dropped to 0.8 He had an injection like you did yesterday and has to return next Wednesday afternoon. He is also a bit anaemic so this is what is causing his dizziness now and again. It is now 5 weeks since transplant and he is still…[Read more]

Hi Jane
It’s so good to read a story like yours. I read it out to my husband Graham who had his 1st STC a month ago aged 56. After I read your story he said what are you smiling about. He won’t go on the forum but I read out all the positive things I see on it to him. Like you our daughter is getting married this year so he needs to get himself…[Read more]

Hi Scott, Hope you are continuing to improve since your last post. Graham has now been home for 2 weeks but very slow improvement. He is so breathless whenever he tries to do anything and has started feeling nauseous recently although manages to eat well (about half the portions he used to have). He didn’t want to go to MRI yesterday morning as…[Read more]

Hi Richard and Carol
it was a month last Thursday since the stem cells went back and according to doctor yesterday at check-up everything going ok but Graham was very nauseous yesterday and I tried to cancel appointment but they said it best to go so we did. He is still very tired and breathless. He is on anti-virals but there is one he can now…[Read more]

Hi Carol, great news about your bloods – the time has flown and glad to hear your happy news. It’s now a month since Graham’s STC and he has now been home 2 weeks today. It’s not getting much easier but I know it takes time. Let’s hope we get the same news as you in another month. I think he is finally fighting off the flu bug he came home…[Read more]

Hi Scott
How has treatment gone for you? Graham came home on Saturday afternoon and was in an isolation room for the whole time (apart from in an isolation room on intensive care for one day when he had a high temperature and atrial fibrilation). His treatment went well but because he had mild flu he was kept in an isolation room from admission…[Read more]

Hi Dick and Carol
Hope you were ok following your last post. I have good news today. I have picked up Graham this afternoon and he is back home. It is 16 days after his stem cells put back. The first week was ok but he had a very weak flu and I think this made things worse than they would have been. Last Sunday he was admitted to intensive…[Read more]

Hi Jo
My husband had fractures in his spine and it took from January to May last year to diagnose. He had six months of chemo on the Myeloma XI trial and is currently in hospital for his stem cell transplant. He had his Melphalan a week last Wednesday and the stem cells returned the following day. It is now 8 days since the stem cells returned…[Read more]

Hi Scott
Graham is in now. He went in at 4.00 today and got a bed by about 5.00 after having some blood taken and temperature and blood pressure etc. Graham now feels he is ready to go in.
Graham felt fine both after the Melphalan and stem cell transplant. The Melphalan and flushes take up a full day and he drove home that day – I was ready to…[Read more]

Hi Richard and Carol
Glad to see you are both doing so well. It will be great when you can go back to your normal foods again.
Graham had his stem cells returned as planned on Thursday but he was allowed home again but we had to go back this morning for a blood testand there was a room there ready for him. The blood test was fine so case put…[Read more]

Hi Scott
I bet Paul did your PICC line! We have just come back from MRI. My husband Graham had his Mephalan on Wednesday last week and his stem cells returned on Thursday. There is a bed there on Ward 44 for him but as he is doing so well at the moment and we don’t live too far away he can stay at home for the weekend. His blood test was good…[Read more]

Hi everyone
Graham has had the Mephalan and kidney flushes today and now home as no bed again. He felt ok to drive home again at 6 pm and now home creating another spreadsheet of tablets as if he keeps ok he can stay home until after the weekend. Tomorrow he goes back at 1pm for the stem cells and then comes home. He will still take his case…[Read more]

Hi
Graham went to hospital this morning but no beds due to other emergencies coming in so he goes back for 8.45 in the morning and has the Melphalan and then a bed will be available at lunchtime. In a way it has worked out good for him as he has another night in his own bed and SCT still starting tomorrow morning and may be able to come home at…[Read more]

Hi Carol
My husband Graham goes in for SCT tomorrow as had chest infection last week and could not go in. I still read your posts to him. Glad you had no mouth sores but bad news about your oesophagus – I am sure it will get better each day and hope you are soon home again and have a long remission.
Best wishes, Angela x