hello Ann

I had swollen ankles and got really numb toes while havig CDT I think it goes with the territory toes are better now but still a bit numb on the two outer toes on each foot hope all goes well for his SCT
love Jo

good news David

heres to the next three months my Para have been 8 since last sept all other bloods ok so no panic yet
Keep well
Love Jo

Hello Pat

I see a kidney consultant every two months the only treatment I can have is a small dose of steriod ad a large dose of sodium bicarb kidneys are at about 20% but fingers crossed hanging on
Love Jo x

Hi Pat
had a consultant app yesterday wore my purple jeans and a pale lilac fleece
very fetching:-P My bones were not effected but I had renal failure so if its not one thing its another:-(
Love Jo x

Hello Pat

I am 65 and refuse to grow old gracefully I wear purple and bright pink and I dont think a colour rinse comes amiss now and again dont think much differently from when i was 40 only on the days when i had DEX which turned me into a tyrant not on any treatment at the moment things do get a bit better 😉 I had CDT not VCD bit the same…[Read more]

Hi Andy

we have just got back from Majorca I must say some sunshine and a few Sangria,s did me the world of good its funny how well we can get relaxed if we take the chance and have a holiday
Keep well and Hydrated enjoy the rest of your holiday8-)
Love Jo x

David

this is wonderful news i had every thing crossed for you, you did have to bite very hard this time;-)
love Jo

Hi Kieth

sorry you have been so ill the steriods had the reverse effect on me i put on 2 stone I was on 120 mgs a week I am glad sugers are back to normal i hoped they would do
in america they use prednisolone steriod if people cannot take dex its much gentler not as agressive as DEX I have it for my kidneys at the moment and dont get many…[Read more]

Hello Les

I understand your shock same thing happened to me my creatinine was 597
i was being prepared for dialisys but my kidney consultant gave me a chance put me on a high dose of sodium bicarb and along with the high dose of steriod my kidneys improved a bit he waited to see what would happen so i have just avoided for the time being the…[Read more]

hi Chris

fingers crossed for you for the second attempt i really hope this drug works for you so you can get your SCT so glad the wedding was a success
keep us in touch with how you get on
GOOD LUCK:-P
LOVE Jo x

Welldone wendy

Keep the good news coming we are all in need of it from time to time long may it last:-)
Love Jo

Hello Amanda and Bob
welcome sorry you have had to join must be a big shock for you both you will get all the help and information you need on this site with many friends to support you keep in touch
Love Jo x

Hi Andy

keep up the good fight I am sure you will get there in the end I hope you enjoy your holiday in the lakes i hope you can relax for a time it will do you good
Love Jo x

Hi Eve and Slim

what wonderful news its just what we all want to hear so there is light at the end of the tunnel Have a wonderful holiday where are you criuseing
to somewhere warm I hope we have booked a holiday in Majorca going for 10 days. I hope you will keep in touch and not be a stranger to us
Keep well both of you
love Jo x

Dear Dia

sorry you are still feeling under the weather I had hoped you would be clear now I was speaking to a lady at my support group about revlimid she has been on it for four years the side effect she used to get an upset tummy she was always on the Loo her consultant gave he a drug similiar to immodium and this has solved the problem hope…[Read more]

Hi Keith
this sounds like good news as soon as you are off DEX the sugars will level out how are you getting on with the insulin did you know once the sugar levels are down and stay down you can come off insulin the diabetic team are always keen for you to stay on it but you will find one or two tablets will do i came off for ages until they…[Read more]

hello Jacquie

S0 Sorry you have had to join this forum the diagnosis must have been such a shock for you which I dont think anyone truly gets over
the tingling in his hands can happen to a lot of people when having the chemo is he on Dex if so that is what cause the sleeplessness its a very common side effect if it gets too bad he must tell…[Read more]

Dear David
so sorry to hear your news you sound a strong person so i am sure you will come out the other side
love jo x

HI Scott
so sorry to hear you have relapsed already that a bit of a blow I have been reading about bendamustine i think you are lucky to be on a trial they have had really good results in America so it all sounds hopeful fingers crossed for you dont let it interupt your golf try and keep well
love jo x

Hi Ali
welcome to the site sorry you have had to join it must have been a terrible blow to you both this site is wonderful for help and advice and as for the DEX we have invented a new word here for it DEXITUDE I think most people find this drug hard to deal with but at least it usually has the desired effect on the beast called Myeloma good…[Read more]