Hi Ozzey

I was type 2 diabetic before I was diagnosed with MM I was very well managed but since all the steriods during CDT and now a small dose because of the renal failure they have put me on insulin as steriods raise the sugar levels so much this could be what has happened in your case I'm manageing quite well but its not ideal but all these…[Read more]

hi Kay

Wow you are a wonder woman I am so glad you can go to work it must be a real milestone for you Steriod are good for pain killing but can play havac with you in other ways I havnt had joint pain but take predisilone for my chronic renal trouble I am diabetic and it puts my sugars up a lot which is a real problem but its better than DEX. I…[Read more]

HI Neelie
What terrible time your dad has had but it does not surprise me I went to my docter because I could barely stand up and could not breath she said just a virus take two paracetamols my husband took me into A&E NEXT MORNING WITH DOUBLE PNUEMONIA AND KIDNEY FAILURE I nearly died while in hospital I had 7 units of blood and after test…[Read more]

hi Andy

I am not a big drinker but I drank real ale and red wine in moderation all though my CDT i SEEMED TO BE OK
GO FOR IT;-)
lOVE jO

hi Jean
nice to hear from you so Frank is being a naughty boy again Geoff is the same the worlds worst patient I am ok at the moment fingers crossed last PEP test was fine so another two months now which is a relief the weather here is still sunny but not as warm I really do hope we dont get snow
Hope you had a nice weekend
love Jo x

Dia
she sounds a brilliant daughter I wish her good luck on the day:-)

Love Jo x

Well done Slim
dear Eve
hope the other tests are fine very sensible to get all appoinments on the same day it may be tiring but it will be over in a day
Good luck
Love Jo x

Great news David

you can now relax and enjoy the next three months you are doing so well long may it last:-)
Regards Jo x

Hello Steph and Andy

this is not a place most people think they would have to join but welcome
everyone here is so supportive and helpful there is usually an answer to any questions you might have and Myeloma help line is priceless
Keep well
Regards Jo x

Hi Jean

how are you and Frank is he behaving himself like most men I suspect not
looks like you have had a bit of good weather in NI lets hope it lasts have you booked a get away yet for this year
Love Jo x

Hi Mavis

so sorry you are having such a bad time I managed quite well with cdt and my kidney function improved they thought it was all the extra steriods which helped the kidneys I do hope they can manage your pain when they do that you will be able to think more clearly. There are lots of new treatments down the line I read about something new…[Read more]

Wonderful news Gill:-P

I hope you have a marvellous holiday:-)

Love JO

HI CAROL

great news about your SCT i hope all goes well enjoy your break in Spain come back fit and healthy:-)
Love Jo x

Hi Eve
glad you managed to get away in the motor home it will have done you some good so Slim is going for the SCT i do hope this will be a success so he can have a good chance of a better life Well one year on and a wedding anniversary which you didnt at times think you would see hope you can go out and celebrate:-)
Regards to Slim
Love Jo x

Hello Dia keep being chirpy:-) 😀 😎

so glad the rev and dex seem to be working perhaps this will be the ones for you:-) so many people for who Velcade didnt work seem to get on well with this regime I do hope your readings stay good and you shoulder stops hurting you are in my prayers
Love Jo x

HI DAVID
Sorry to hear you have not been well just to say quite a few people I know have had this 24/48 hour bug perhaps thats what you have had
Regards Jo x

Hi Andy

sorry the meds have not worked for you so far thats a bit od a bummer I have not heard of the regime you are about to start but i wish the the best of luck
Kind regards Jo

hi Chris

glad you are doing well and your PPs are coming down all be it slowly congratulations on your forth coming wedding I know St Audries its a lovely place:-) I hope you have a wonderful day Keep well and strong
Love Jo x

hi Tina

I was told 2/3 ltrs a day the more the better and yes it can include tea squash not much coffee for me as i have damaged kidneys also the odd glass of wine is ok if you have some water along side kidney specialist told me this I prefer red myself!!:-) 😀
Good luck Jo x

Hello Terry and welcome
glad you found us its good to hear what goes on over the pond I read Dr James Berensons reports you seem much further ahead with treament than us
you are so lucky to have been diagnosed before much damage has been done my kidneys have been badly damaged good luck with holding of the progression of MM
Kind regards Jox