Hi David
hope you are well not been able to get on this forum for weeks since they changed the system
sorry not answered your posts before now I would get your leg checked for DVT it sounds like similier
symptons to some one in my clinic they had DVT
Best wishes JO

hi Eve

the velcade really worked for me o paras at the moment the kidneys got worse AFTER I finished chemo funny that so much so they fitted a fistular in my arm any way I must be an ornery b*gger as they have improved at the last visit to the clinic My consultant told me of the new improved velcade which is supposed to be even better than the…[Read more]

Hi Eve

sorry slim is still unwell did you know there is Velcade 2 a follow on which is supposed to be even better than the first one I have just or three months ago finished velcade didn’t need platelets at all but had several blood transfusions not been on this site for weeks could not get on every way I tried my son in law did it for me
Love Jo x

Hi Tom
BACK ON JOHN HAD TO DO IT FOR ME yippee
big hug
Love Jo xxxx

hi Scott

how are you doing keeping fairly well I hope I don’t know what they did to this site I have not been able to access it for weeks had to get my son in law to do it My Velcade treatment has worked but my kidneys got worse once the treatment had finished they don’t know why so much so they fitted a fistuler in my arm fortunately had a bit…[Read more]

Tom
I bet you both can't wait fingers crossed
Love Jo x

hi Jean

hope all is well for you and Frank havent heard from you for quite while
Lovc Jojo x

you are right Eve the bluebells are beautiful at the moment the woods near us are one carpet of blue and the smell is heavenly it gives you a lift just to see it I am glad Slim managed to get into the woods, any news on his scan! yet are you keeping well
Love Jo x

well Tom

I think a double is called for wonderful news for you and Elaine you will be able to sit back and relax for a couple of months
BIG (HUGS):-P
lOVE jO X

Sounds a greaT trip David

its a wonder you had the energy to complete it time for a rest now how is the velcade going well i hope:-)
Love Jo x

hi Sarah

sorry they could not get enough of those little devils so better luck next time. gave up on my hair and had it all cut off so now its just wash and go my grandson said the other day when looking at photo's i like that one you had hair then gave me a big kiss so kids are cool:-P if they love you is doesnt matter
Love Jo x

Hi SCOTT

Dont get down hearted it seems like they are not giving up on you and your body could probably do with a rest let us know how you are getting on keep in touch:-P
Love JO X

Well Dia

I think this is good news if anything it will buy you a bit of time i am glad your nuets are good and the purdah can end I have the velcade subcut once a week much less side effects PN etc after my sixth cycle UCH want me
to have velcade once every two weeks stretching it it out to 9 cycles less agressive they say then thalidomide…[Read more]

Dia

I am keeping everything crossed for you I am really glad you are positive and the news about the treatment is sounding better thinking of you
Love Jo x

Hello Mavis

I am on the 5th cycle and after the 6th UCLH want me to go on fortnightly velcade and extend the regime to 9 cycles instead of 8 I hope it works can only give it a go:-Dhope you enjoy your trip to see your daughter
God bless Jo x

Hi Eve
been meaning to ask you how is slim doing is he well now did you manage to get his scan i know you were worried about it
Regards Jo x

Go for it Pat

If you can afford it why not I am not a great house wife if you dont move things you dont notice the dust we go out a lot if we can Your results sound good so perhaps not much longer for treatment I am on cycle5 get swollen ankles a bit but ok other wise the graduates sound fun they must have tsken you under their wing a surrgate…[Read more]

Hi Clare

my MM journey was diagnosis in Jan 2009 pneumonia' renal failure and MM had CDT which gave me 3 and a half years remission kidneys still only 20% but hanging on started Velcade at the end of last year hoping to get a good remission again this is very much a personal journy I think at your mums age she needs to take her time and take…[Read more]

Have a good time on tour I hope the weather is kind to you
Regards Jo x

Hi Jean
aVERY HAPPY BIRTHDAY TO FRANK
i am so glad he is doing well what relief after all the worry all daughters dont like shopping I have two and they hate shopping so I have to go with my sister in law shes a shopaholic! by the time i have spent half a day with her it puts me off for weeks!!!! hope you are keeping well
Love Jo x