Hi Jacqui and Geoff

Fingers crossed all goes well good luck
Regards Jo x

hi Scott
well a new journey begins i am keeping my fingers crossed for you that everything goes well you are braver than me I do hope your kidneys come though ok but you have to take the risk as the chemo wasnt working for you
at the end of the day we have to do what it takes:-P
Love Jo x

HI Paul
I am also on the same regime as you no real side effects except my ankles swell a bit just a bit of fluid retention so not so bad hate the dex though
I am diabetic so it really plays my sugars up but i can cope with that
good luck for the rest of your treatment
Regards Jo

Hi Mavis

I agree we have so many things to be grateful for especially the people who create these wonderful drugs that keep us going thank the Lord
Love Jo x

hI Sandie

sorry I cannot help with the Zometa as I dont have it but some people have reported flu like sysmptoms when they first get it but i think they settle down after a while
Love Jox

hi Sandie

I was the same as your mun resistant to the first two antiB'S the good old IV penicillin some times the old drugs are still best how is your mum doing ok now i hope
Regards jO

Hi Mavis

thanks for your kind thoughts I am doing ok now velcade seems ok how are you still in remission I hope
God bless
love Jo x

Hello Terry
go ahead and blub why not we all do because terrible mm dont give up hope loads of new treatments coming on stream my husband is my carer he does get a bit depressed but he will be with me all the way as i am sure your wife will be for you so try and look forward as someone said to me the other day if you are a good poker player you…[Read more]

HI mothias

great news wonderful Uclh hope it goes well for you and you get a long long remission:-)
Regards Jo x

HI Helen
i hope you start to get more ups than downs i hope you get your parking space back it must be difficult to work as it is with a bad back hope you are sorted soon

love jo x

hi David
I am about to start cycle 5 of Velcade I have it once a week with cyclo and dex day one and two so not so bad I also have pamidronate once a month
my PP are now down to 4 so all good except the blip with a dose of pnuemonia been ok in the main
Keep well
Love Jo x

good news Andy and steph

lets hope this is the start for you so you achieve an SCT GOOD LUCK
fOM jO X

Hi Tom

I didnt give it to you honest!! I had a temp of 39 when Geoff phoned the
Hospital doesnt it make you feel rotten I hope you will be better soon penicillin soon put me right they said in the hospital they have had so many chest infections that turned into pnuemonia so you be CAREFUL DONT WANT YOU TO GET GET ANY WORSE:-(
lots of love…[Read more]

Hello Vicki and Colin

thanks for your kind thoughts I am on the mend now
Love Jo x

Hello Jane

thank you for your kind thoughts
Love Jo x

Hi Scott

thanks for you kind thoughts I am ok now but the kidneys didnt like the Anti B;s I think they are settling down now sorry about the bendamustamine
Have thought about CDT AGAIN it worked first time for you it could work again better than knocking your kidneys out with an SCT
hOPE THINGS GO WELL FOR YOU I start Velcade again this…[Read more]

hi Tom

you are not kidding thanks for worring about me a big (((HUG FOR YOU))
from one of your flock Baa
Love Jo x

Hi Eve
Could you try and get him refered to The new McMillan cancer centre at Uch
its state of the art I have recommnded Dia trys as his hospital seem to be mucking him about I suppose you would have to go through McMILLAN BUT ITS WORTH A TRY
lOVE jO X

Hell Dia

thanks for your kind thoughts i have been worried about you and your treatment I do hope they came up with something for you or else you will have to try another hospital can you get down to London I go to the UCH once every three months they run a state of the art cancer unit funded by McMillan I wonder if you spoke to them you could…[Read more]

Hi Helen
I am back up and well not running but getting there once they used penicillin which fortunately I can take it soon cleared up I am starting Velcade again this week as the bloods are ok lets hope this was just a blip as you know I havent shut my self away I cannot bear it so there is always a bit of a risk but i have to live my life the…[Read more]