Hello alastair
I am under DR kwee Yong at UCH lONDON she is a recognised expert in the field of Myeloma you could try there if you are able to travel they have a very good team in the care of Myeloma

Regards Jo

Hello Dia

sorry I caanot give you any comment about Velcade but I put a lot of thought and prayers for you all if I could send it down the wire I would 🙂 like Tom I dont have all the words but lots love and hugs 😎

Love Jo xx

Hello Kath

just wondering how you are as you havnt posted just lately I hope you are ok 🙂

Love Jo xx

hELLO gAYE

So sorry your RT treament has not worked I hope they can sort you out and give you some relief:-) glad the pomalidomide is holding the MM lets hope it soon starts to get rid of it my thoughts are with you

Love Jo xx

Thanks for the info Dia America is so much more advanced than us it gives me great hope for new treatments
Love Jo x

Oh Dia

such beatiful words you can give a voice to what others think

Love Jo x

Welcome Ali and Guy

SO sorry you had to join this club it has been a great comfort to me as I am sure it will be to you when you are in the darkest places there is always someone with advise and comforting words I now its hared to find anyone in the big wide world that has heard of Myeloma that is why this site is so important

Be strong love jO 🙂

hello annika

I had cdt treatment I was 61 I tolerated it pretty well except the emotional bits with the hated DEX I have had MM for 2.5 years now or that was when it was diagnosed I am sure I had it for quite a bit before that there are people in my clinic about your husbands age who are doing very well on the medication so hopefully he will be…[Read more]

Wonderful news Eve

so glad slim is home you can build him up now you can feed him on all the things he likes, you really do find out true friends in times of trouble dont you, sounds as if you have some really good ones
Keep us posted

Love Jo 😎

Dear Tina

I was so sorry to hear about the loss of your husband Patrick

My thoughts are with you and your family

Love JO

Susan

I was so so to hear about Kevin my thoughts go out to you and you family

I followed Kevins story from all his post on the old site he was an inspiration to us all and yes one of the good guys

God bless Jo

Brilliant news David what a relief your other reading sound ok to so no more treatment yet Keep practicing on the bike the numb bum gets better
or put a cushion on your seat:-) You can now relax for a bit and enjoy life 😎

Love Jo x

Eve so glad slim is starting to recover my thoughts and prayers have been with you both, he must be a very strong man to be able to come through all that has happened I hope he will be home with you very soon
Love jO:-)

Hello Jean

fingers cross for the cruise you must be really looking forward to it especially with the family where do you hope to cruise to hope it is some where warm

Love Jox 😎

Hello Kathleen

I think it is very natural to be tired my husband did everything for me when I was at my worst it really got him down especially doing things like washing and ironing which he hadnt done before he has always cooked but it was slightly different when he had to do it all but he did all this cheerfully but I know it really tired him…[Read more]

Hello Jean

glad frank was right about the pulled muscles but he was a naughty boy to worry you so much how did he get on with the MRI scan hope it went went well I hope you get insurance for the cruise it will do you both good plenty of g&t's and not having to worry about driving..

Love JO XX

Hi Eve and Tom

Ditto not offended in anyway and tom you are looking gorgeous must be all the attention from the young bride :-S

Eve I do hope slim is feeling a bit better and now getting all the attention he needs

Min your posts are wonderful so full of help and information

Love Jo xx

Hi Sharpy

I have had two years remmision fingers crossed it lasts a lot longer,
didnt have an SCT due to major kidney damage had CDT for four months follow by a year on 100mgs thalidomide hope this helps.Para protien last month was in a band to fient to measure

Love Jo 😎

Hi Eve
dont be sorry you have been through a real worring time I expect you had a lot on your mind and you were exhausted hope slim is feeling a bit better
Love from jO XX

Hello Dia

Just love the blues we go to as many gigs a we can the last really good one was willy and the poor boys if you have not come across them you should have a go on the net last CD we bought was John Mooney
Like your stuff as well
Love JO xx 😎