Hello Gill

What awful news Like minimouse how can this doctor look into the future like that who knows what revlimid will do I speak to a lady at my support group who was told three years ago not much hope they put her onto revlimid
which at the time she had to fight for three years later she is well and still in remmission she was too old for…[Read more]

hi kieth

I am following your story closely I am not on velcade yet they tell me it will be my next treatment I am really not looking forward to the DEX as I am a type 2:-/ diabetic so have to go on insulin as steriods really raise sugars I think about you all,all of the time hopeing everyone is successful

Good Luck with the next SCT

lOVE jO XXX

Hello David

Where do you find these things thanks for the laugh

Love Jo x

Hello Jean

So glad you had a good holiday It does make a difference good luck at the next appointment and all will be well my appointment is the week after Easter I will get my latest PARA results so fingers crossed please let me know how Frank gets on
Love Jo xxed

Hi EVE

have you tried good old vanilla complan I made a milk shake from it with fresh bananas or strawberrys you can also thicken savoury soups with it there is also something called build up they give it out in the renal clinics
pobably not all that pleasant just a hold your nose job

Love Jo:-P

Hello Jean

Did you have a good holiday with no problems are you all nice and brown
Love Jo x

Hello David

I really enjoyed that you do find some good things

Love Jo:-D

Hi Dai

Did you enjoy the info day hope it did not make you too tired I hope you found it informative and relaxing and well worth going to if I am ok I will go to the London day in October

Love Jo 😛

Hi only me

I think there might be something in the hereditay link in the clinic I attend ther are two sets of brothers with MM plus a gentleman whos father had it a bit more than a fate

Love Jo

Congratulations looks like its about time he made an honest woman of you Tee hEE

Love Jo8-)

hI Debs

When I was on CDT I didnt get sinus but the same as Bridget a constantly runny nose which got worse when I ate anything
but I did get a cold which left me with bad sinus pain for a while.
Love Jo

Hi sarah

Kate Humbel hasnt got anything on you she mostly watches and make silly comments:-D
Bridget I always am doing silly things I do wonder at tImes

Love Jo xxx:-S

Hi eve

its good to get these things off your chest when I go to see my consultant he is always an hour over time as they double book him we waited four and a half hours once and then when i needed Thalidamide I had to wait two hours every time for the drugs we used to go and have lunch in the cafe in the hospital also the blood test clinic can…[Read more]

Hi Min
Hope Peter is ok now and you can get away for a few days it will do you both good lets hope the infections stay away

Love Jo

Good luck dia I hope your next appointment is a positive one we are all cheering for you :-0
Love Jo

hi mike

sorry to have to welcome you to the site but you will find your online friends here are so caring and helpful
I had type two diabetes before i was diagnosed so unfortunatly when taking the DEX I had to go on to insulin as it raised my sugars so much. Myeloma uk is a brilliant organisation they are so helpful and the line to the nurse…[Read more]

hello Dia

My husband and I went to the london info day last october it was a brilliant day and was over almost before it began as it was so informative and a very positive day I really felt uplifted Myeloma uk do a brilliant job even the catering was first class the break out groups were good with one just for carers which my husband found…[Read more]

i am so sorry to hear about your brother what a terrible shock which I know for you will hard to come to terms with I send you Big HUG you have every right to be angry Myeloma uk started the take 2 campagn for this reason as too many people have a late diagnosis as so many doctor ignore the symtoms which a simple blood test could solve my thoughts…[Read more]

Hi Bridget

I too read the mail on line it saves buying a paper I was wondering how you are if you are now getting over the worst side effects of the revlimid
has you RT treatment relieved your pain

Lots of love Jo x8-)

Dear David

You are a very cheerful person always trying to give is a good story
I think your name suits you well keep us laughing

Love Jo x:-P