Hello Jean

I hope you and frank have a great holiday and come back nice and relaxed with a good sun tan
Love Jo 😎

hello Gill
I echo what the others have said my dam also burst what a lovely girl

Love Jo x 🙂

Hello Mark

sorry to hear about your dad everyone is correct about the myeloma help line they are brilliant I expect they will deal with your dad tumour first before they start intensive treatment the drugs and treatment today are so much better than 10 years ago I would expect your dad is young enough to have a stem cell transplant and if…[Read more]

Hello Jean

hope the G&T helped we got stuck on the sand dunes at maspolomas in a shower of rain while we were there got soaked. I think its good to make plans otherwise life is always on hold
Love Jo x

Chin up Dia

You have been so positive upto now I am so sorry the beast is back so soon
but you are a strong character so i am sure you will cope with whatever this thing throws at you next, look at all the new drugs that are in the pipe line that must give us all hope for the future. I could not have a SCT as my kidneys are to badly damaged…[Read more]

Hello Jean

How is northern irland this sunny day I hope you are not feeling so worried now and looking forward to your holiday in Spain we have just come back from Grand Canary had a good time I know where Frank is coming from we just hope it will go way hard to admit we are ill fingers crossed he will be fine.

Enjoy Your Holiday

Love Jo x :-S

Hello Gill

I wasn't told what my paraprotien levels were on diagnoses only my Bench Jones figures which were 22% after my CDT treatment my para's were in a band to fient to measure and still are I stayed on 100mgs of thalidomide for twelve months stopped because of PN not had any treatment for a year now except a monthly infusion of…[Read more]

hI gaye

I think consultants are human to you may have cheered up her day She will be thinking you really appreciate her
Love Jo x 😎

Hello amanda

I know it must be hard for you if you love your mum, have you tried the
Local hospice or Mcmillan I am sure they would help with some concelling

Good Luck JO

Hello Jill
I had shingles last summer terribly painful I am really sympathetic for your mum I think she was a bit late for the antivirol but the doctor could have offered her some aciclovir cream I tried an old treatment which was dabbing the pustals with cider vinegar you smell a bit chip shoppy but it worked better than camomile and dried it up…[Read more]

Hello Jean

I have not had a bad pain but do get tinges from time to time I am afraid I am with frank this time I am sick of going to the hospital so I just will not put everything down to MM I know its a bit naughty of us it must be in our nature

Kind regards Jo :-/

Hello Gaye

I am so sorry your pain has not gone away I hope the RT soon begins to work
you must worry a lot about the drug not turning up I dont think these people realise what it really means to people like us you can do without the worry lets hope things get better soon.
Love Jo 😎

Hello Tracey

So sorry you had to join this site but this is the place where you will get help and support also you can phone the great people at Myeloma uk they are so kind and know so much about the condition you just have to give them a call.I had CDT which worked well for me I managed to tolerate a 100mgs of Thalidomide for a year after CDT…[Read more]

David

sorry you did not get remission from your SCT but my docs say plateau is pretty good and you could be in that stage for a long time fingers crossed
you are an inspiration to us also with your cheery comments and little jokes we are all with you SO CHIN UP 😛

Love JO 😎

Roz

How lovely you must be a great friend I agree with every word

Lots of love jO X

:-/ Glad I dont get squirrels like that in my garden

Love Jo 😎

Hey Bridget

There is one in london in october I hope to see you there I am sure you will make it

Lots of love Jo x 😎

WELL DONE MIN
I have been to a myeloma info day and It is brave people who stand up and give talks that make the day the carers are so important and myeloma uk do not forget that fact.

Love Jo xx8-)

Hurray Min 😎
II
great news your life will once more become yours (with in reason ) the days of getting up and having to go to work will soon fade i hope Peter is well enough soon to go for a short hloiday it will do you both good

Love Jo x

Hello Clara

When I was on CDT my ankles were swollen a lot of the time I could not take diuretics due to kidney damage I had to drink upto 3ltr a day which didnt help he should have a word with the doc or nurse I am sure they will give him somethin as for the rash I found that it was the antibiotic I was given (CIPROFLOXIN) that caused it is he…[Read more]