chin up Bridget
I am so sorry you are feeling so rotten you are such a fighter so I know you will not give up I know several people on Revlimid and once they have got used to it its ok one lady in my support group has been taking it for three years she was one of the original people that went to the press to be allowed to take it she now has a…[Read more]

hELLO kEITH

I have been reading a report from america where they have decided to give velcade once a week only they have found out that it has the same effect but almost non of the side effects I dont know why we dont get that here it would but a much better way of treating the disease

Love Jo x 😎

Hello Jet
i have not tried any alternatives for the myeloma but i have had accupunture for pain relief which worked quite well

Regards jO :-/

Hello Henry

welcome to the site sorry you have had to join the club I was diagnosed Jan 09 age 61 had the CDT which worked well for me although I did end up
with numb feet due to the thalidomide this is a common side effect my toes are still fairly numb but small price to pay as the treatment got on top of my Myeloma I have a monthly infusion…[Read more]

David

You are part of the liberation movement and dont you forget it

Love Jo x 😎

hi Sarah

I was made to wear a liberty bodice hated it mine had button which attached
to my fleecy lined knickers (YUK) had to wear them all winter but only knee socks so legs got chapped all winter so not so toasty

Love J0 x:-)

Hi Gaye
sorry hear your back pain is not much better will they be able to operate if the RT doesn't work how are you getting on with your new treatment have you had any results yet

Keep well
Love JO

😎 hi Ladies and gentleman
I have found bras a pest most of my life as I have always been on the plump size and more plumpish on steriods I had to wear one I have found a sports bra with good support and no bones the best when my ribs were painfull I popped 3 ribs which was agony
Onwards and upward

Love Jo 😀

Brilliant game David I enjoyed playing it got all the countries correct
but not in the right places

Love Jo :-S

hello Jet

I have been reading your blog I hope you are feeling a bit better now I know the shock must have been terrible for you if its any consolation I did not lose my hair during trearment(CDT) your hair looks wonderful such a lovely colour
Love Jo 😎

Hello Ruth

I can relate to your worries MYELOMA is an awful diagnosis at any age but 29 is so young you will get all the help and encouragement you need from this site which may become important to you as you are seperated from your partner the hopital may be reluctant to give you any real information
Good Luck Jo

Hello Jon

WELCOME to the site it is the very best place for support help and information especially to know you are not alone all the odd and disturbing symtoms you may get there will always be someone who has had it before and can talk it though with you I hope they sort out your pain soon good luck for the journey
Keep well
Jo 😎

Hello David

great news it all looks positive your consultant must be please if he is only going to see you in two months keep up the good work

Love Jo x 😎

Hello Kath

Jolly good too, I agree we all have bad days so its all right then to feel like that you have a lot to contend with

Keep well Love Jo x

Hello Sandie

I think it will be ok for your mum as she doesn't need treatment yet and fingers crossed for you lets hope its just a false alarm

Regards Jo 🙂

Hi Min

good one it got me too I thought what!!! is she doing

Love Jo x

hello Eve

I had CDT so I can relate to the problems also had kidney damage so have had to take drugs for that I found that taking the DEX in the morning and the thalidamide at night I was not awake all night which seems to happen with DEX if witha glass of milk helps the dex down I know some people take it with yogurt I took all my other…[Read more]

Hi

I loved thye frog dance it made me laugh for ages thank you

LOVE JO 😎

Hello Kevin
so glad you are back sorry you have been so ill I am glad you are a resiliant sod I have missed your posts and wondered what had happened to you

Keep Well Love Jo 😎

hello jET

Iam not in the under 50's group as I am a bit older but I read your post then your blog you seem to have had the same experiance as me I was diagnosed jan 2009 my kidneys have not recovered enough for an SCT this was my my choise as the chemo involved with the transplant could have destroyed my kidneys completely I could not bare the…[Read more]